tag:blogger.com,1999:blog-41131764366934033782024-03-16T00:23:47.862-07:00Perspectives on growing up with a neuro disorderUnknownnoreply@blogger.comBlogger98125tag:blogger.com,1999:blog-4113176436693403378.post-48800523261895064542023-10-07T21:21:00.001-07:002023-10-07T21:21:09.870-07:00Elementary School P.E/Adaptive P.E rewriteI scrapped two posts a while ago when I was getting rid of posts that were really inaccurate. With two of them I turned them into drafts because of inaccurations and putting someone into a good light that hated me (a teacher). They were a lot more in depth than this post will be. I'm going to read into those posts later, and possibly make another post about this subject.
I was talking to a few people on Facebook when I was in high school. But someone found me several years later in hydrocephalus groups on Facebook that started to send others my way right away. I found out through some of these people, and in the hydrocephalus groups about people who had to sit out completly because of their shunts. From what I remember most of these people were/are older than me by a decade.
If you're just recently looking into my blog current shunt technology really started to improve in 1962 with a shunt that Roald Dahl helped invent to help his Son who has hydrocephalus. Before his shunt the technology exisisted but it was far more dangerous, which says a lot considering how bad things can still get now. So the survival rate really started to improve at this point. Which is why I've never really met anyone with congenital hydrocephalus (either online or in person) that is currently much older than 60.
There was rules regarding football and contact sports that had to be taken seriously in my case, and they were. My 5th grade teacher noticed how bad I was doing athletically. I ended up in Adaptive P.E for 2 years which was either 1 on 1, or 1 on 2. It helped a lot, although I've made no attempt at sports since High School. I had at least 2 adults in my life that was making a huge attempt at making me feel like that I was mentally retarded. The adaptive P.E instead went out of the way to do the opposite. There was other stuff going on at the that made me black out things that the 2 other adults were doing to make me feel the wrong way about myself. But even though it was the same period, I either never forgot the words that the instructer used to make me feel better, or it was far easier for me to remember how he thought of me.
Look through my labels at the end of the web version of this post for my post about Roald Dahl. I'll be working on a more indepth post about him soon. I haven't been able to work on more indepth posts for a while for multiple reasons. Thanks for reading!
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-7103572473693542362023-09-13T21:42:00.002-07:002023-10-02T16:23:08.574-07:00Phoenix Hydrocephalus Walk 2023I've had a noticeable amount of views on my prior hydrocephulas walk posts recently. They had T-shirt pick ups for 2 years due to Covid. They had it at SkySong last year, where they'll have it again this year on October 28th. Unfortunately it's looking like this is the first year since I started going in 2012 that I won't be able to attend.
The venue has a large parking lot where they have registration, booths, games etc. set up. The path they use for the walk itself is great.
If you're coming from out of town there is a hotel right next to the venue, and a Motel 6 close by near the zoo. Last year I stayed at a affordable Air BnB that was a mile away. Public transit is available very close to the venue.
The Great Pumpkin Race in Tucson raised money for both UMC/Banner Health Neurology department and the Hydrocephalus Association at certain points after I started attending around the same time I started going to the HA walks. The last one was in 2019. It was started for one of the Co-Host's Son. He is now a Uni Student it is highly unlikely they woukd start up again.
There is a link to Phoenix HA Walk page below. Thanks for reading!
https://secure2.convio.net/hydro/site/TR/WALK/General?fr_id=2051&pg=entryUnknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-77465463721445639062023-03-05T19:33:00.004-08:002023-10-07T20:06:22.488-07:00Participating in a Special Ed Track Meet against my will (in 5th grade).Before I start I have no medical problems other than hydrocephalus. The last 14 years has worn me out, mostly having to deal with the problems with my shunt. When I was in Elementary especially later on I had trouble running because of my ankles, dealt with my speech impediment, and motor skills. Special Ed classes didn't start until Middle School, and it made me normal enough because of the other kids in the class.
We would have a feeder school track meet for Elementary Schools going into the High Schools in the district. They went through the process of finding the fastest kids in each participating class in each grade. I didn't expect to not come in last. I didn't question it when I was called into the office to be given a shirt the day of the track meet, and was sent along with everyone else. I wasn't told at all what was going on until I was called to run with kids from other Elementary Schools that actually had severe physical/developmental disorders. We all got a blue ribbon after, my main it just as far a the closest trash can.
I had no choice than go through with it, and get out of the view of the other students as fast as I could. This changed the way I see myself immediately. People are way more likely to jump to assumpations about me as an adult than when I was a kid. I'll post again if I find a way to deal with it, other than complaining whenever someone makes themseleves obvious. Purposely getting away from certain people has been the best option so far, but not always possible.
One thing I didn't mention at first. My Parents weren't notified at all, and my Dad was pissed. My Teacher that year went out of his way to have my back, and the Principal did too. They would have found out last minute without being able to get me out of the situation.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-28047806006469054162022-06-28T16:28:00.000-07:002022-06-29T13:45:29.932-07:00My experience with missing hydrocephalus/shunt related symptoms as an adult.I hit my valve hard in Janurary 2009, which had happened multiple times without any problems. Between my history of being fine after, and not having insurance at the time I didn't seek medical attention. I developed headaches soon after which varied when it comes to pain level, but got consistently really bad for a long time after. I had a CT Scan in June of that year which showed no signs of increased ventricles which I was able to pay for out of pocket. When my insurance from my job started at the end of the year I went to the ER. The scans came back the same, and I was referred to a neurologist. He gave me a diagonisis of TMJ, and it seemed that I couldn't get a refferal to my neurosurgeon. I had issues with my finances soon after including not always getting enough hours to have my health insurance through my job every month. When I was getting the health insurance. Between the two, and other issues I flkaed out for a while.
I went back in 2013 after I was promoted at my job, and was able to get things in order. The scans including an MRI all came back looking normal. I was sent to a neurologist, and she tried multiple medications. It was mostly meds like low dose seizure meds that can also be used to treat headaches, because of not knowing for sure what the source was. She also tried botox, and the only time time that I noticed that it had been working was when I could tell it was wearing off months later. Between feeling like I was hitting a dead end, and having to deal with other issues I stopped going to appointments for what was supposed to be a short break in 2015.
Due to finacial issues, and a lack of motivation I didn't go back until 2019. It started with more scans, and a couple other routine tests that I had done before. It ended with the same results, and no option to continue on at that point. I had a incident at work several months later that I was, and still am certain that it was shunt related. I went to my neurosurgeon, and got the same results. The scans were close to the same, but I was told that the previous neurologist had given me a referral to a neurologist with more experience that was right for me. From there I was referred to another neurosurgeon in the same office that the neurologist is at. After the routine scans, I was given a lumbar puncture which showed that the pressure of my cerebrospinal fluid was way higher than it was supposed. Since it's been confirmed that we found the source, I've been a lot more hopeful.
I've had symptoms the whole time, some of which has gotten worse over time, the most noticiable one being dizziness. But since my scans looked normal, and I wasn't showing a lot of the major symptoms I wasn't able to start to get the needed help for over 10 years.
Below is a link to my first post on this subject about having a similar experience as a baby.
http://timothy-landry.blogspot.com/2022/06/my-experience-with-missing-major.htmlUnknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-76540326650269151392022-06-21T18:11:00.003-07:002022-06-21T18:39:49.864-07:00My experience with missing major hydrocephalus symptoms as an infant.<p> My shunt was placed when I was 16 months old. But I was showing symptoms long before that, possibly as early as when I was born. But it only became obvious that something was wrong with me when I missed multiple milestones. My major symptoms were missing milestones that involved having to pulling myself up. I was eventually hitting them, but it was a very slow process. My other major noticeable high pitched screaming. But I was either missing the majority of the others, or they wasn't noticeable enough for my Parents to get a referral to a neurosurgeon. What got me my referral was a nurse at a free clinic noticing me. She showed up to my Parent's apartment did head measurements, and got me a referral to my childhood neurosurgeon. It all happened so quick that my Parents didn't realize what was going on in time to thank her. My developmental delays that I had as a infant immediately got better. I had other delays that I still struggle with, but most of them got way better with different therapies as a child. Most of them are normal with people with hydrocephalus, or other neurological disorders. But there are two that my parents were told directly involved my late diagnosis. Those two are my speech impediment, and my hand tremors. I couldn't speak until I started speech therapy in Preschool. It slowly got better, but it got to the point in high school where being pulled out of class was a bigger issue than not getting the last few years of speech therapy I would have gotten before finishing high school. My hand tremors started around the time I started puberty, and hasn't stopped since then. My current neurosurgeon told me that it's not necessarily because I was diagnosed late, but it may have been caused at that age because of certain hydrocephalus symptoms coming back, or starting later on in life. I'll talk about both more in future posts. I'm hoping to write another post this week, about my experience with a lack of shunt malfunction symptoms this week.<br></p><p><br></p><p><br></p><p><div class="separator" style="clear: both; text-align: center;">
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</div><br></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-58393678490822848502021-09-20T18:35:00.007-07:002021-09-20T18:35:34.119-07:00Barometric pressure headaches (hydrocephalus)<p>There's a lot of blog posts about the barometric pressure headaches, and the connection it has to hydrocephalus that are either pretty long, or hard to understand so I'm going to try to avoid both. </p><p><br /></p><p>There are two studies that I've found online that explains this problem. The first explains in scientific terms the exact point barometric pressure gets high enough that it effects ICP (intracranial pressure). The second one explains that the cerebrum either increases in size or decreases in size depending on the weather including stormy weather, but also when it comes to temperature or humidity. To be more specific the rest of the brain stays the same size, but the cerebrum changes sizes. In stormy weather, the heat, and when it's humid the size increases. But in cold weather it decreases. So if your barometric pressure headaches are worse in the summer than the winter, this might explain why. Also I live in Arizona where it normally doesn't get too cold. So between that and other desert weather patterns. I would like to eventually like to visit a colder State in the Fall to see how much more of a difference it makes when it comes to my headaches. </p><p><br /></p><p>I also found a source while researching for this post explaining that barometric pressure issues might just be lethargy, which I've experienced far longer than the headaches itself. I noticed it as a teenager because of my age, but probably dealt with it during stormy weather long before that. My headaches started when I was 22. and I've definitely made up for not really having them in childhood during the last 12 years. Lethargy is of course is the minimum for barometric pressure headaches. The other end is headaches that so bad that you can't get out of bed when you might normally have a very high pain tolerance.</p><p><br /></p><p>Sources are below, and I'm including more of a experience that a guest blogger wrote for me years ago. </p><p><a href="goog_1490909507"><br /></a></p><p><a href="https://pubmed.ncbi.nlm.nih.gov/33839865/">https://pubmed.ncbi.nlm.nih.gov/33839865/</a></p><p><br /></p><p><a href="https://healthnewshub.org/new-research-weather-changes-brain-size-affecting-physical-psychiatric-conditions/">https://healthnewshub.org/new-research-weather-changes-brain-size-affecting-physical-psychiatric-conditions/</a></p><p> </p><p><a href="https://waltersdegree.blogspot.com/2017/09/did-you-know-some-interesting.html?m=1"> https://waltersdegree.blogspot.com/2017/09/did-you-know-some-interesting.html?m=1</a></p><p><a href="The guest blog post"> </a></p><p><a href="The guest blog post">http://timothy-landry.blogspot.com/2015/04/guest-blog-by-mikayla-weather-and-shunts.html </a><br /></p><p><br /></p><p><br /></p>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-4113176436693403378.post-6607667254988707352021-07-29T20:59:00.001-07:002021-07-29T21:01:20.435-07:00Different types of hydrocephalus/shunt related headaches (Part 1)<p> I was inspired to write this post a while back, and was re-inspired again a few months ago from a friend of mine who also has hydrocephalus, and has a lot of headaches that I didn't have at his age (he's a teenager). I haven't been putting much effort in getting the post time, because I've been able to spend time with him outside of our normal meeting spot this week, and it was very important that I focus on that instead during the summer. I was also planning on researching this topic more thoroughly, but I've decided to keep it more basic, and possibly go more into detail later. </p><p><br /></p><p>The first two is <u><b>Over draining and Under draining headaches. </b></u>It's seems to be commonly mistaken for meaning the opposite of what it is. Over drainage is when the shunt is draining more of the fluid that needed, and decreases in size, and may cause them to collapse over time. Which results in <u><b>slit ventricle syndrome</b></u>, which has the same symptoms as over drainage, but the diagnosis has to be a lot more specific. It also is most common in young adults who has been shunted since infancy. This might mean the same shunt for a long time, but I don't have a source for this. The symptoms for both resembles shunt malfunction symptoms but increases when standing, and decreases when laying down flat. From what I've heard this won't help immediately, it might be more like laying down for a nap. Just to be clear this is from the experiences from a couple people that I know, not something I found online. <u><b>Underdraining headaches </b></u>unlike Over draining headaches, will likely need to be fixed with a shunt revision because it's when the shunt isn't draining enough causing the ventricles to expand. It's symptoms are headaches increasing in frequency and severity. One of the symptoms is dizziness but the others are usual shunt malfunction symptoms. These are vomiting, and in older children increased irritability, poor school performance, and anti social behavior depending on the person. I also want to point out that this is all possible with adults of course, but there was a point where my source "Hydrocephalus Association" almost always focused of children, and not adults with hydrocephalus. But my source is also very resourceful, and covers a lot in just the one article.\</p><p><br /></p><p><u><b>Barometric headaches </b></u>is going to have to require it's own post because of how resourceful I can make it. I'm going to write about it based on my experiences, and the experiences of my friends with hydrocephalus. I'm going to have do more research to explain exactly how it works. But barometric pressure can affect how someone's shunt works. This can include flying on a airplane, traveling to a different part of the State or Country where the sea level is higher, hiking, or more commonly when there's a change in barometric pressure when there's overcast or when it starts raining. People reactions to it usually differs too. For example having none to little reaction to it to severe headaches without any warning. There really isn't anything neurosurgeons can do about it either. The best thing you can do is take pain killers, make it through the day, and rest when you can. Feel free to ask me about my own experiences, but I try to avoid posting anything too personal regarding my health on my blog. The links on the bottom of my posts are ones that have been recommended to me. </p><p><br /></p><p>I should note that the source for <u><b>dehydration headaches</b></u> might not be as accurate as the one that I used from the hydrocephalus association, and I'm aware that people without or hydrocephalus gets dehydration headaches, but when I was researching for this post, I was told my multiple people that there's definitely a difference. The symptoms are headaches, fatigue, and change in mood. The questionable part is the article says that people with hydrocephalus should drink a lot more water, as in a glass an hour. This seemed questionable to me, and something like that should be recommended by a neurosurgeon instead. It wouldn't help that hydrocephalus and other disorders people with hydrocephalus also commonly have might cause them to not always get to the bathroom on time. </p><p> </p><p>Another type of hydrocephalus related headache that was mentioned to me was <u><b>humidity headaches</b></u>. I couldn't find much information on it, but one of the links of the bottom is by a blogger named Skye Waters talking about how heat impacts her hydrocephalus, and she includes more personal experiences in her comments. There's also <u><b>malfunction headaches </b></u>but this at least should be known by anyone with a shunt, and there's plenty of information it online. </p><p> </p><p>The last one I'm going to mention on this post is headaches caused my <u><b>scar tissue and corroding shunts</b></u> which I need to research more. But both frequently is more common with older shunts, and has more to do with discomfort with the shunts than headaches. </p><p> </p><p>Let me know if there's anything I missed that should be added to my next post about the same subject. I'm also not saying that headaches are always shunt related, because that it definitely not true. But I wanted to help people understand that at the same time that there is a lot of things hydrocephalus or shunt related that can cause headaches. It doesn't always mean a malfunction, and it's also not "all in our heads".</p><p> </p><p><a href="https://www.hydroassoc.org/complications-of-shunt-systems/" target="_blank">Resource for over draining and under draining headaches</a> </p><p><br /></p><p><a href="https://www.shinecharity.org.uk/for-professionals/hydrocephalus-and-shunt-information">Resource for dehydration headaches</a></p><p> </p><p><a href="https://skyewaters.com/hydrocephalus-whats-your-weather-triggers/">Personal opinion for heat/humidity headaches</a> </p><p><br /></p><p><a href="https://www.youtube.com/watch?v=kgcI0G4dDpk&t=7s" target="_blank">Video by hydrocephalus association about barometric headaches (6:54)</a><br /></p><p><br /></p><p><br /></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-87568049305174404892021-06-11T16:17:00.003-07:002021-06-25T08:23:27.180-07:00Alien Ant Farm's Dryden Mitchell's spinal injury<p>This is one of several posts where I'm going a little off subject. I've done it some before but definitely plan on doing it more often in the near future as I run out of ideas. I figure that considering the condition I normally write about there are probably people who will see this with spinal injuries, or at least spinal related birth defects. I really started to like Alien Ant Farm when they peaked when I was High School, and liked them even more when I got their album Anthology. Between Anthology and their next album Truant they were in a bus accident in Spain when they crashed into a semi that was pulled over on the side of the road. The driver Christopher Holland was killed in the accident, and caused serious injuries to the lead singer Dryden and the band's head of security, David Zajic. David suffered a fractured skull and Dryden fractured his C2 vertebrae which was made worse by the way he loaded into the ambulance. The injury caused him temporary paralysis, but could have easily caused permanent paralysis by the injury itself , or how the way he was moved right after. In a article several months later, Dryden said that the long term affects of his injury that was still a problem at the time was a lot of nerve damage and not being able to feel his finger tips. In a recent interview, he mentions the nerve damage again but not the numbness in his finger tips. He started to perform again soon after little by little and they released their next album a little over a year later.<br />
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The links below are my main sources and include that I left out, partially because I wrote this post and did all my research on different days and based it off what I could remember. The first video is a recent interview and includes Dryden talking about the bus accident and also their new album that came out this year. The first music video is their most popular singer, and a song that may be the only Alien Ant Farm song they've heard. The song is a cover of Michael Jackson's "Smooth Criminal". The second music video is their song "Glow" is from their album Truant and one of the first music videos after the accident. The third music video is "Movies" which is on the same album as Smooth Criminal, and it received minor airplay on at least MTV when it was released. The Fourth music video is "Let Em Know" from their most fifth album Always and Forever.</p><p></p><p></p><p><b>I wrote this blog post 6 years ago, and ended up not posting it until now. I'm trying to get back into the habit of writing my blog frequently. and decided that finishing this blog post would be a good choice, forgetting that I had finished it, and never posted. I added an extra link with more information about his recovery. I also want to add that I saw AAF at the Pima County Fair 5 years ago. I couldn't afford to go see them at their peak, and missed them my first chance or two after their hiatus ended.</b><br />
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<a href="http://www.mtv.com/bands/a/alien_ant_farm/news_feature_030710/">http://www.mtv.com/bands/a/alien_ant_farm/news_feature_030710/</a><br />
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<a href="http://www.billboard.com/articles/news/75599/alien-ant-farm-recovering-after-bus-accident">http://www.billboard.com/articles/news/75599/alien-ant-farm-recovering-after-bus-accident</a><br />
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<a href="http://www.mtv.com/news/1455168/alien-ant-farm-singer-still-recovering-from-bus-accident/">http://www.mtv.com/news/1455168/alien-ant-farm-singer-still-recovering-from-bus-accident/</a><br />
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<a href="http://www.thefader.com/2002/09/25/dryden-mitchell-of-alien-ant-farm-slowly-making-his-way-back-after-crash">http://www.thefader.com/2002/09/25/dryden-mitchell-of-alien-ant-farm-slowly-making-his-way-back-after-crash</a></p><p> </p><p><b>New link:</b> <br /></p><p> </p><p><a href="https://www.nzherald.co.nz/lifestyle/alien-ant-farm-starting-small-again/UOS67WFUXEJQYC6WOP6W26S62M/">https://www.nzherald.co.nz/lifestyle/alien-ant-farm-starting-small-again/UOS67WFUXEJQYC6WOP6W26S62M/</a> <br />
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-85531126610207014202021-02-25T12:05:00.000-08:002021-02-25T12:05:17.593-08:00Neurological disorders and sensory issues.<p> I've been meaning to post about sensory issues since before I started writing my blog again last year. I was going to wait until I was able to research it a lot more, but I changed the way I decide to post about a recently, and a post that I wrote about noise sensitivity has been viewed frequently since I started paying attention to my blog stats again. Also this is important, <b>I'm going to be mentioning sensory processing disorder in this post. It's possible to have sensory processing or sensory issues in general without having the disorder. I do not try to diagnose people with stuff, but it's also a thing that usually doesn't get a official diagnosis a lot. </b>I'm going to mention two other people in my post. One is a minor, and the other is unable to give permission to rather she would want her first name included, and it would be quite a while before she's able to. <br /></p><p><br /></p><p>Sensory processing issues in common with both hydrocephalus, and cerebral palsy. Just from what I've been told it sounds like it's common with other neurological disorders too, but I'll rather have someone else write about that later on, so they can at least include personal experience. I'm including hydrocephalus because both me and a kid I'm mentoring has it, and my mentee has cerebral palsy. With hydrocephalus it's common because of the pressure build up on the <span class="ILfuVd"><span class="hgKElc">somatosensory/sensory cortex. With Cerebral Palsy it has to do with the injury to the brain.</span></span></p><p><span class="ILfuVd"><span class="hgKElc"><br /></span></span></p><p><span class="ILfuVd"><span class="hgKElc">Basically when you have Sensory processing issues some or all of senses go haywire. This isn't limited to the 5 main senses either. It might include things like spatial orientation, or sense of balance. For me the big things are noise sensitivity, and not liking to be touch, or be crowded. With my mentee, it's different things but I don't want to go into detail yet without his permission or the permission of his Parents. But I have a friend with cerebral palsy that's a little older than me that had some of the exact sensory issues as my mentee. I wasn't aware of the connection until I was looking up some things I noticed about him that I at least thought was "tics" and found info online for SPD. </span></span></p><p><span class="ILfuVd"><span class="hgKElc"><br /></span></span></p><p><span class="ILfuVd"><span class="hgKElc">My friend that isn't available to give permission for me to use her name, was given a official SPD diagnosis when she was in the 10th grade, so when she was around the 15 or 16. She spent some time in DES/CPS custody, and has been told that she would have been diagnosed earlier if it wasn't for that. She found out through special education testing. The advice she gave me was to look the kid eye to eye, explain things to him like he was younger than he is, and tell him one thing at a time so he process everything if I have multiple things to explain. My friend's main things are noises and crowds. With her it's more loud noises, but with me it's just certain noises especially scratching noises, or a bunch of people talking all at one time. She also mentioned being triggered by words or things. But I'm going to include that in another post when I've done more research, and I have two days off in a row to write a post. </span></span></p><p><span class="ILfuVd"><span class="hgKElc"> </span></span></p><p><span class="ILfuVd"><span class="hgKElc"><a href="https://www.hydrocephalusscotland.org.uk/content/sensation-perception/">Hydrocephalus (sensation and perception)</a> </span></span></p><p><span class="ILfuVd"><span class="hgKElc"><a href="https://www.shinecharity.org.uk/news/news/post/74-hydrocephalus-parents-under-pressure">A little more information about hydrocephalus and sensory issues</a> </span></span></p><p><span class="ILfuVd"><span class="hgKElc"> <a href="https://www.flintrehab.com/sensory-problems-due-to-cerebral-palsy/">Cerebral Palsy and sensory processing issues</a></span></span></p><p><span class="ILfuVd"><span class="hgKElc"><a href="https://www.sensory-processing-disorder.com/an-adultand-a-recovering-spder.html?fbclid=IwAR3gcZazREgzP1EiOISFTFBS0v5a_WC_SJdj2JOKoMajVXrynTcgH-YNPSo">Adult experience with SPD (hydrocephalus)</a> </span></span></p><p><span class="ILfuVd"><span class="hgKElc"><a href="http://timothy-landry.blogspot.com/search/label/Noise%20sensitivity">Previous posts about noise sensitivity</a> </span></span></p><p><span class="ILfuVd"><span class="hgKElc"> <br /></span></span></p><p><span class="ILfuVd"><span class="hgKElc"> <br /></span></span></p><p><span class="ILfuVd"><span class="hgKElc"><br /></span></span></p><p><span class="ILfuVd"><span class="hgKElc"><br /></span></span></p><p> </p><p><br /></p><p><b> </b></p><p><b> </b><br /></p><p><br /></p><p><br /></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-74792315513115627282021-02-08T13:57:00.006-08:002021-02-08T13:57:42.953-08:00Personal experience on dealing with a learning disability at work.<p>Growing up and then up until I started doing research for my blog when I was around at 26, I thought that a lot of the panicking I did from having a learning disability, and possibly from other things that has to do with my brain anatomy was from me being lazy, or lacking motivation to put effort into my schoolwork. I got one on one help with my homework in the Sixth grade, but between the work load, my learning disability, and my memory in general it would take me hours each night, and sometimes cut into my sleep if not almost always. With all the effort I put into it that year I would still mostly only get C's. That part I was fully aware that it wasn't my fault, because a big part of it had to do with my low test schools. I would cram for tests and memorize as much as I could before the test, and then purposely forget everything so I would be able to do the same thing for the next test. So I would get to the point where it would be time for midterms, or finals and be screwed. It didn't help that my circle of friends were mostly honor roll students that year, and it at least felt like since they seemed to be stressing out far less about it, so I decided that it wasn't worth putting in the effort. </p><p><br /></p><p>When I decided to refuse help after the Sixth grade I would routinely forget to do my homework, and only remember the next morning when I got to School. I had to take a class my Freshman and Sophomore years that had to do with keeping track of homework, practicing note taking things among other things. I can't remember how much of that class included actually doing homework, but regardless it wasn't enough time. I flunked my Freshman year by half a credit, and I was flunking half of my classes at some point during my Sophomore year. A Teacher I had the next two years eventually <strike>made </strike>forced me to complete all of my homework in her class knowing that if I didn't get it done in School, that there was no way that I would be turning in those assignments, or at least not on time. Somehow she helped me get caught up, and was only half a credit short of graduating on time. </p><p><br /></p><p>When I was confronted about missing assignments usually during my IEP meeting finding those assignments involved fishing them out of my backpack. I would panic to pack up before class and throw any assignments I had directly into my backpack. I would always intend to reorganize my backpack later on, and of course it would only had several weeks after School started during my IEP meeting while trying to find specific assignments that ended up crushed in the bottom of my backpack. The same teacher that forced me to do my homework in my class, put a end to this habit as well. Although my backpack was still very messy, and barely organized if at all. Another thing was difficulty in forming habits, specifically hygiene and doing something specific in a class each day. What comes to mind right away when it comes to trouble forming habits is a assignment in 8th Grade Social Studies where we learned about the stock market, and we had to pick stocks and keep track of them daily for several weeks. I loved the idea but after a few days I unintentionally broke the habit of doing it. Not thinking to ask for help catching up, or possibly being nervous about it I ended up dropping the ball completely, and not completing the assignment for the next several weeks.</p><p><br /></p><p>None of these things stopped being a problem after School ended. If anything it got harder in ways because in School most teachers were aware of learning disabilities, and in a way knew how to deal with it. I had a IEP, and had 2 or 3 Special Ed classes. On a side note I ended up staying or eventually ended up in those 2 out of 3 of those classes because of my black hole of a backpack, and refusing tutoring when it came to complex math classes. Knowing and talking to very regularly to two different people that has the same neurological disorder and learning disability that I do whom actually does put in the effort, or did while in School, I've learned that I probably would have freaked out. If I would have managed to not have missing assignments, then increasing the workload would have caused me to panic, and not get my work done.</p><p><br /></p><p>As an adult, and working my learning disability has affected me in ways that wasn't as noticeable when I was in School. The two main things is grasping concepts, and having it take forever for me to pick up speed with new concepts. This only became a problem for the most part when I started working at Kroger. The only time my learning disability showed in restaurants jobs was when I would panic, especially in kitchen jobs when I would have to juggle multiple tasks at the same time <b>and </b>be risking burning food or not getting my part of the order out on time.</p><p> </p><p>My position for Kroger is produce clerk, and I've been in the same department for almost 10 years. I was promoted from a courtesy clerk when my division restarted their cut fruit program. They had tried it at least other time before Kroger bought my division out. It lasted for 3 and a half years before they started to source it out, and it took me around 2 years before I was fast enough to always get everything done on time. I did strictly cut fruit for almost 2 years. After that for over 7 years including occasional "manager" shifts at stores that had 2 day loads where there was no ordering required the day of my shift. For the 8 months I've been strictly in the wet rack position. Basically everything that's on the wall or aisle in produce where everything needs to be kept wet is my job, including cucumbers, squash, and peppers because it's usually in the same section.Either each specific position or in general I had, and still have problems with organizational skills (especially when I panic), and forming habits. In addition I have trouble grasping concepts, or understanding the point of things. The trouble with concepts, and finding the point in things has to do with nonverbal learning disability as well. But it's either more obvious to me now, or there just isn't any childhood examples that come to mind.</p><p><br /></p><p>Most if not all of my managers over the last 10 years, both store and produce managers has been understanding of my learning disability and usually without me having to explain. Certain managers gave me or provided me with enough hands on training where I don't really have a problem any new concepts anymore. What was done recently to avoid me panicking really badly when corporate or store policies change is to give me more than one day to switch over to whichever way things are supposed to be done. The way that I eventually got better at organizational skills is realizing how much extra effort I have to put in to fix everything after, and remembering that. I have a backpack for personal use because I don't drive or have a roommate who does. It still gets messy quickly, so I'm not sure how realizing that solution earlier would have helped. When it comes to habits what I started to do is write every habit that I forget at work, and when I'm confident that I've learned that habit, I cross it off. No comment on how long it took to make a habit to write down my list of habits that I need to make a habit of. </p><p><br /></p><p>One of the main reasons that I've stayed in the same department for so long is because I want to avoid a learning curve in a completely new department. There however is other departments that I've helped in that I struggled far less in. So if there's ever a problem in my department that won't resolve itself I have options that I'm not too nervous about. Just a reminder I haven't completely resolved all of these problems after almost 10 years of doing the same job. But it has gotten far easier to deal with. My point of this post was to encourage others with similar learning difficulties, trying to help those people be understood, and provide possible solutions. <br /></p><p><br /></p><p><br /></p><p><br /></p><p><br /></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-35394495592476055772021-01-23T12:49:00.006-08:002021-01-23T12:49:34.558-08:00Link dump for upcoming posts.<p> https://www.hydroassoc.org/complications-of-shunt-systems/?fbclid=IwAR1DlnyI04d0Mgd8tgH6L1w36QZ0eRz6sXQmXxeGkNiwpoveyjvQ0TuPaKY <b>(Shunts)</b><br /></p><p> </p><p> https://www.hydroassoc.org/hydrocephalus-day-to-day/?fbclid=IwAR3LiG6oRkiJKDvDMcIsPO-NYtXPkB7enF13LVDERsiNCnUR2813wupyem0 <b>(Headaches and barometric pressure)</b><br /></p><p> </p><p> https://www.sensory-processing-disorder.com/an-adultand-a-recovering-spder.html?fbclid=IwAR3gcZazREgzP1EiOISFTFBS0v5a_WC_SJdj2JOKoMajVXrynTcgH-YNPSo <b>(Sensory)</b></p><p><b> </b></p><p> https://shuntwhisperer.com/2017/10/16/me-and-the-barometer-2-0/?fbclid=IwAR3GSCM4shZj0xT9siGJAeuZEDjVNUh0SLCan9zxpN0fSeH-LUW9D3AtfGk <b>(Barometric)</b></p><p><b> </b></p><p> https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4553745/?fbclid=IwAR2VwFEg9gPCWi16e36jcS78jiSej0KekK4mLH0jaS5ghPBSgvvJzVWsh-w <b>(Calcification)</b><br /></p><p> </p><p> https://www.theguardian.com/books/2016/sep/12/roald-dahl-medical-pioneer-stroke-hydrocephalus-measles-vaccination?fbclid=IwAR1nTgtVyiT5dFgX2W_49J3_QKm1KK5f3rxy30kVI7FgTahSMzQ7pwX50rA <b>(Roald Dahl)</b></p><p><b> </b></p><p> https://www.wnycstudios.org/podcasts/radiolab/articles/248590-blanc <b>(Looney Tunes)</b></p><p><b> </b></p><p> http://protomag.com/articles/roald-dahl-and-the-curious-shunt?fbclid=IwAR2rl-rVOqmFF0I8WLln8GTw4oWnUV45FTwv1CSU0JZohgg_ugy2lWiwvIs <b>(Roald Dahl)</b></p><p><b> </b></p><p> https://dollecommunicationsblog.wordpress.com/2015/03/06/weather-app-helps-manage-barometric-pressure-related-migraine-headache/?fbclid=IwAR2TD5sQTT7JS7-_174EbqsAhKBYINXCsV7ehFC0gOMoR-Px271Np72QZyo <b>(Barometric)</b></p><p><b> </b></p><p><b> </b><br /></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-30466318441106616002021-01-19T10:39:00.001-08:002021-03-13T16:43:23.686-08:00Paraphrasing the hydrocephalus association's teacher guide: introduction and links to each post.<p> If this is the post first that you're seeing from this series of posts, I've been going through the hydrocephalus association teacher's guide, and paraphrasing each section. I've been doing it backwards because the information from it that isn't easily found online is at the end of the guide and in the middle of it. So it made sense to me to start at the end of it, and work my way to the beginning. Also my first post was written 5 months before the rest of it, because I quickly lost the motivation to do it. If you look through my posts from the last couple years of blogging before I took a long break, you'll see that this was a consistent problem. </p><p><br /></p><p>Since I skipped the introduction, I've decided to do that last, and skip all the information I've already covered. The main thing that was covered in the introduction, but wasn't in the rest of the sections was that children usually have traumatic childhood experiences revolving around surgeries, rehabilitation, and other experiences in hospitals. The only other thing that I find worth mention is that the hydrocephalus association mentioned that shunts are extremely durable, so very much not likely to break due to falls and bumps. They also recommend not stopping them from participating in physical education, sports, and activities. I'm mentioning this because I've seen parents in hydrocephalus groups on Facebook worry about their shunts breaking, and I want to try to put people's minds to ease. But at the same time I personally encourage parents to ask their child's neurosurgeon advice about this. The one exception to shunts breaking that I know of where they hadn't had the same shunt for decades was from someone who I don't speak to anymore because she made me uneasy enough that I couldn't trust her to be my Facebook friend after a while,<br /></p><p><br /></p><p>I personally never had any traumatic medical experiences in school, or during school. For me my experiences involved being diagnosed late, and having therapies that had to with extra physical challenges because of that. When it comes to sports I was advised not to play contact sports.Most other sports but I was normally pretty bad, and it wasn't worth making the effort to me to keep practicing, or even try. </p><p> <b>Here are the links to each section in this series of posts:</b> <br /></p><p> </p><p><a href="http://timothy-landry.blogspot.com/search/label/Paraphrasing%20HA%20teacher%27s%20guide">Physical problems associated with hydrocephalus</a></p><p><a href="http://timothy-landry.blogspot.com/2020/12/paraphrasing-hydrocephalus-teachers.html">Learning disabilities (nonverbal learning disability)</a> </p><p><a href="http://timothy-landry.blogspot.com/2020/12/paraphrasing-hydrocephalus-association.html">Learning disabilities (math, memory, attention)</a></p><p><a href="http://timothy-landry.blogspot.com/2021/01/paraphrasing-hydrocephalus-associations.html">Learning disabilities (motor skills, organizational skills)</a> </p><p><a href="http://timothy-landry.blogspot.com/2020/05/paraphrasing-hydrocephalus-associations.html">Social problems (isolation, depression, anger)</a></p><p><a href="http://timothy-landry.blogspot.com/2020/06/paraphrasing-hydrocephalus-associations.html">Social problems (social cues, nvd)</a> </p><p> </p><p> </p><p><br /></p><p><br /></p><p><br /></p><br /><p><b> </b></p><p><b> </b><br /></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-60693559115025872262021-01-17T14:23:00.115-08:002021-01-17T15:18:05.795-08:00Epilepsy struggles (guest blog)<p> My name is Keyt (Kate), I am 51 years old and I have had Epilepsy caused by Hydrocephalus since birth. Unless you are someone who has known me longer than 15 years you may not know this fact because I have been lucky enough to have found a drug cocktail that has stopped the seizures. However, it was a very long road to this point which included all kinds of medication trials, hospitalizations, various doctors and even comas and dying.</p><p>Like I said, my epilepsy was caused by Hydrocephalus. Because this is a hydro blog I won't go into too much detail except to say it's an overabundance of spinal fluid in the brain causing a swollen head and various other health problems, including seizures.</p><p>I began having seizures at 3 months old. My mom took me to numerous doctors but because infant neurology wasn't common in the late 60s/early 70s i was hospitalized often and placed on the few medications available at the time. </p><p>By the time I reached 5 years old I had become so sick doctors said I would never be able to go to school. Finally at that age I was placed in C.S. Mott Children's Hospital in Ann Arbor, Michigan where, while in a coma I was finally diagnosed with Hydrocephalus.</p><p>School wasn't easy from kindergarten through graduation. Kids never understood me because if I wasn't having seizures I had major temper and behavioral problems because of the seizures or the high doses of medications I was on. Teachers tried to handle me but the older I got the harder to handle I became. Some thought i was just incorrigible and my parents were just making up this thing called hydrocephalus.</p><p><br /></p><p>As an adult, seizures affected my life more than most people knew. I was still having breakthrough seizures (seizures despite being on medication) and by the time I was in my late 20s I gave up and stopped taking any meds at all. I began drinking a lot and acting out with every boyfriend I had. I didn't care what was happening with my life because once anyone heard the word epilepsy they would stop talking to me as much or just disappear.</p><p>In 2001 I was in a very bad car accident. I remember feeling as if I was about to pass out and while driving down a busy road with few open spaces, I ended up in a swamp. Witnesses say I traveled at least a mile and miraculously never hit a car or a house! Call it a miracle or a wake up call, or both, this was when I decided maybe medications were necessary. Since then I have been on Tegretol and Neurontin and ive only had 1 seizure. That one was because I had a kidney removed and couldn't take the doses I had been on. </p><p>Epilepsy happens in many forms. Some people have reactions to light or extreme temperatures (I dated a guy once who would have full blown seizures up to 40 times a day if it was hot outside!), others can't handle quick movement like in cars or amusement park rides. Some people have full blown fall on the floor, twitching and drooling seizures, others stare off into nowhere for a while. </p><p>Epileptic patients rarely talk about their condition even when it's very obvious. We want patience and understanding for our behavior because even if we aren't having seizures, epilepsy still has an affect and so do the medications we have to take for a lifetime. Seizures will seriously affect the brain, some more than others. In my case I have a speech impediment and bad anxiety disorder. I know some people who can barely talk or walk at all.</p><p>As with any other disABILITY, most people would rather others asked them about their illness than be judged for it. I've had seizures at school, at family gatherings, with friends and various places in public. I don't mind answering questions as long as others are really interested.</p><p><br /></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-79581974880895807412021-01-14T11:07:00.001-08:002021-01-14T11:12:28.810-08:00Paraphrasing the Hydrocephalus Association's Teacher's Guide: Physical problems associated with hydrocephalus
<p> I've been paraphrasing the Hydrocephalus Association's teachers guide
so I've gotten to the point where it's the first couple of sections, and
information that's a lot more easily found online. So I'm going to keep things
shorter, and not try to include as many details. </p>
<p> </p>
<p>The first part of the section covers that children with hydrocephalus
usually have other medical conditions like Dandy Walker syndrome, spina bifida
and cerebral palsy. Other ones that aren't listed that I know of is epilepsy
and Chiari malformation. It also covers needing physical therapy and
occupational therapy. The part that might not be as well-known is the
hydrocephalus association recommending comprehensive development testing, and a
neuro-psychological evaluation early on. </p>
<p> </p>
<p>I'm not sure how well known it is but CSF can cause vision damage that
ranges from very mild vision problems to very severe vision damage, including
being legally blind. Of course there's other causes of vision problems, and the
HA isn't trying to say this is the only cause. It can also cause eye
misalignment problems that can be fixed with surgery. From hearing about
personal experiences, eye misalignment issues at very common with at least
cerebral palsy as well. </p>
<p> </p>
<p>The next sub subject covers precocious puberty which can easily be found
online, but<i> </i>I feel like it needs to be covered still. It might be caused
by the brain anatomy associated with hydrocephalus affecting the pituitary
gland. This is more likely with children that had brain trauma including brain
tumors and meningitis.It can also cause behavior that isn't normal at a earlier age. The sections that I decided to skip is shunt revisions,
headaches, seizures, and hand/eye coordination. I've covered hand/eye
coordination in my blog before, and I plan on writing detailed posts about
headaches soon, and I've had someone guest blog for me about barometric
pressure headaches before as well. </p>
<p> </p>
<p>Next week I'll be covering the introduction to the teacher's guide, and
general information. Then posting the links to each of my posts covering the
sections. I still plan on writing regularly, but it will be less frequently
because I need to do research, and breaks are necessary.</p><p> </p><p> </p><p>Source: https://www.hydroassoc.org/docs/A_Teachers_Guide_to_Hydrocephalus.pdf</p><p><br /></p><p>The guest blog about barometric pressure headaches: http://timothy-landry.blogspot.com/search/label/Weather<br /></p>
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<![endif]-->Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-64705563649737761342021-01-06T14:49:00.001-08:002021-01-06T14:56:05.653-08:00Paraphrasing the Hydrocephalus Association's Teacher Guide: Learning Disabilities (Part 3)<p> The last two sub-sections are motor skills, and organizational skills. I'm going to keep both pretty limited, and then do more research,and post about the same subjects later on. I've posted about motor skills talking about my own personal skills during my first year of blogging which can be found by clicking on motor skills label at the end of the post. I've just recently started to figure out how to write about organizational skills in depth through mentoring, and I plan to work on that soon.<br /></p><p> </p><p>The three kinds of motor skills that tend to be effected with children with hydrocephalus is psycho-motor coordination, fine motor skills, and visual motor skills. According to the Teacher's Guide psycho-motor skills shows in clumsiness, and not being aware of how much space their body occupies.The guide was most specific with fine motor skills effecting writing but it also includes cutting with scissors, tracing, artwork, and participating in games. Children with hydrocephalus may have problems with printing and writing cursive. Their handwriting may be in poor quality and unevenly spaced. They may also write slowly compared to their peers. The hydrocephalus association encourages using computers for all writing assignments, but from experience that might not be financially available, and may cause their handwriting to be worse later on. With the visual motor skills section I'll have to do more research on it, and include it in another post because of my inability to understand what the Teacher's Guide means by everything. What I do understand is that it includes not being able to tell distance and direction. The distance part I've always assumed was poor depth perception because of my eyes. The direction part is another thing I want to research more about, and post later on. Another part of the poor visual motor skills is having trouble keeping in the lines when coloring, and finding their place on a page. Another thing they have problem with is spatial orientation which includes having problems telling the difference between left and right, over and under, and backward and forward. </p><p><br /></p><p>Children with hydrocephalus may have problems following with one step. The next paragraph mentions that may have trouble understanding the information as a whole, and finding the meaning of it. So the two things are most likely related. It may affect the neatness and quality of their work. It also means trying to understand every detail instead of the information of a whole which quickly turns into a information overload. According to the Teacher's Guide this may result in them using familiar habits or routines to cope which resembles misbehavior, inattentiveness, or laziness when it's really the opposite. </p><p><br /></p><p>I was diagnosed late, and a big part of what was affected was my motor skills being worse than what is considered to be normal. The only other person with hydrocephalus that I know that I could really compare this to has cerebral palsy, so it's really hard to tell how much of a difference it is. But with the part about telling the difference between left and right is something that is still a problem, at least when attempting to give directions. But when I was younger I couldn't tell the difference between my left and right shoes. </p><p><br /></p><p><br /></p><p>Source: https://www.hydroassoc.org/docs/A_Teachers_Guide_to_Hydrocephalus.pdf</p><p><br /></p><p>Also this a post I wrote the first time I was working on my job describing how I discovered my lack of sense of direction: https://timothy-landry.blogspot.com/2013/08/how-i-found-out-i-have-no-sense-of.html<br /></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-78375638482995909982020-12-30T11:58:00.003-08:002020-12-30T12:10:36.499-08:00Paraphrasing the Hydrocephalus Association Teacher's Guide: Learning Disabilities (Part 2)<br /><p><br /></p><p>
</p><p> I'm going to be splitting the section until 3 different parts because
there are sub-sections that I want to make sure that I understand more before I
paraphrase it. I've mentioned in previous posts that whenever I mention
"Children" in these posts it doesn't necessarily doesn't mean adults
too. I've been trying hard to focus on the teacher's guide, other than digging
up other sources, or especially not assuming. </p>
<p> </p>
<p>The three sub-sections I'm going to focus on memory, math, and attention.
Children with hydrocephalus can throw off their teachers or parents with the
ability to memorize facts via root learning. But at the same time not being
able to explain the material or answer questions about it. With math the
teacher's guide is specific with it not being a problem with all children with
hydrocephalus. They are usually able to understand the general concepts, but
are stumped by things like sequencing and rote tasks, and things that involve
their fine motor skills. I'll be talking about fine motor skills in my next post.
They used the difference between learning the concepts of multiplication, and
being able to recite the multiplication table. With some students math learned
in higher grades like algebra may be impossible. So it's important to see if
something can be done about in with the child's IEP if it's a problem. Some
children with hydrocephalus possibly regardless of having nonverbal learning
disability considering the way the teacher's guide have trouble staying focused
in class. This may either having trouble focusing/staying on track in class
and/or getting lost in instructions or with complex language. This can be seen
as bad behavior. The teacher's guide used the words lazy, dreamy, unmotivated,
and inattentive. </p>
<p> </p>
<p>For me the memory problems was only ever a major issue in church. So instead
of going off topic I'm going to post a link to a post talking about it on the
bottom of this one. With both math, and attention my experiences partially has
to do with me no longer wanting to put an effort in School through most of
Junior High, and High School. But I've realized that it has way less to do with
it after reading through the teacher's guide. When it comes the multiplication
table, it was a bigger issue trying to memorize. Compared to how long it took
my siblings, it took a lot longer than either of them, but I can recite a lot
more of it than they can now. With Algebra I was flunking it badly weeks in. I
couldn't understand the concepts, but I also refused one on one tutoring, I
also constantly forgot to do my homework which wasn't something that was fixed
until I had a teacher that forced me to do all of my homework during her class.
When it came to attention I thought it had to do completely with not wanting to
put in the effort. I got "kicked" out of Algebra after flunking the
first semester. I got an "A" in Pre-Algebra the next semester. Then
they had me skip between complex math classes, and eventually ended up getting
stuck in Special Ed math until I finished school. I would lose track of
note taking so at some point I decided to put in the effort. I've spoken with
at least two people who attempt to write everything down out of fear of
forgetting it, and end up crashing mid-day because of it. When it comes to
instructions the experience that sticks out the most is in web design class my
last semester of high school. Since it was a complex situation I couldn't
understand the first step, and didn't have time to get help before I got way
behind in the steps. It was curriculum needed for the second semester, and I
had finished my credits so it wasn't necessary to go back and get help at all
at that point. </p><p> </p><p> </p><p> https://www.hydroassoc.org/docs/A_Teachers_Guide_to_Hydrocephalus.pdf</p><p> </p><p> http://timothy-landry.blogspot.com/search/label/Faith</p>
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<![endif]--></p><p><br /></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-58802076975239411942020-12-23T13:27:00.004-08:002020-12-30T12:11:10.877-08:00Paraphrasing the Hydrocephalus Teacher's Guide: Learning Disabilites (Part 1)<br /><p><br /></p><p> </p><p><!--[if gte mso 9]><xml>
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</xml><![endif]-->I've been paraphrasing the Hydrocephalus Teacher's guide section by
section. I was lacking motivation to do it after the first post, but I'm fairly
confident that I'm ready to start posting every other week, or every week
depending on my days off, or if I need a break. The next section I'm going to
focus on is learning disabilities, and I'm going to be splitting it between
multiple posts. I'll be focusing on mostly nonverbal learning disability. There
a 4 different specific learning disabilities that's the most common. The first
is Nonverbal learning Disability. The others are difficulties in understanding
both complex and abstract concepts, and retrieving stored information. The last
one is spatial/perceptual disorders, </p>
<p> </p>
<p>When children with hydrocephalus have learning disabilities it usually
doesn't become apparent until the 3rd or 4th grade when the learning material
becomes more complex and abstract. Children with hydrocephalus are likely to
have learning disabilities involving processing information as well, and this
also becomes more common around the 3rd or 4th grade as well. </p>
<p> </p>
<p>People with Nonverbal learning disability have problems processing nonverbal
information. They struggle with learning new concepts, which definitely isn't
limited to school work. It causes them to need to have the new concepts
multiple times, and it takes them longer to pick up the pace if needed. Same
with picking up social cues. Children with nonverbal learning disabilities tend
to do well in early Elementary school with a few exceptions including fine
motor skills. It becomes far more apparent later, <span style="mso-spacerun: yes;"> </span>possibly as late as the beginning of Middle
School when they are left to handle tasks on their own. The Teacher's Guide
lists a lot of common things that happen at least during these years that may
appear to be laziness, but isn't necessarily, These include not being prepared
for class, missing assignments/homework, having trouble understanding texts,
Social Studies specifically. Other common things are misunderstanding
directions and their teachers and peers. Again these behaviors may seem
like bad behavior, but it's actually the result of child struggling. When it
comes to verbal abilities usually have a easy time learning words and
pronunciations, but have trouble understanding the meanings via text. </p>
<p> </p>
<p>Two other things that were mentioned was children with nonverbal learning
disability often being in denial or their learning disabilities, or even their
Parents. Also it mentioned that they are commonly anxious in public, and angry
at home. </p>
<p> </p>
<p>Coming from my own experience I started falling behind in the 4th grade. I
might have in the 3rd grade, but I had a great teacher who helped me a lot more
than the last 2 teachers I had in Elementary School. I was failing almost all
of my classes in the 6th grade mostly because of the sudden work load. I worked
what I definitely felt was a lot harder that some of the kids in my friend
circle, and ended up only getting C's. My biggest issue was not remember what I
would read in my textbooks. Then retaining that information until I took my
test, and needing to do the same thing again for the next text. So in a sense I
gave up, and put very little effort into until my junior year. Somehow I
managed to only be one semester behind, and half a credit from graduating on
time. </p>
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<![endif]--></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-17238755357713749862020-12-13T08:28:00.004-08:002020-12-30T12:11:38.367-08:00Paraphrasing the Hydrocephalus Association's teacher's guide: Social and emotional issues (part 2)
<p>I'm going to try to pick up the pace, but I've been very slowly going
through the hydrocephalus association teacher's guide and paraphrasing it to
save others from having to attempt to read the whole thing. I've going through
the sections with what is least known instead of from front to back. I'm going
to focus on social cues and skills. My last post from 5 months ago was based on
depression and isolation.</p>
<p> </p>
<p>Many Children (and Adults) with hydrocephalus may having learning problems,
and that might include Nonverbal learning disability. One of the symptoms of
NVD is the near inability to recognize verbal and nonverbal cues. This results
in missing social cues like facial expressions, gestures, and tones of voice. That
results in taking things like sarcasm literally that has to do with the tone of
voice. If it's not explained it can be very hurtful if not explained. Problems
with social cues is not limited to facial expressions and tones of voice
though.</p>
<p> </p>
<p>Other social problems that some children with hydrocephalus is being very
talkative, but there conversations aren't very thorough and they may process
information slower than normal, which might cause problems with their peers.
This results in it being common for them to befriend children younger than
them. </p>
<p> </p>
<p>The last thing is that they might have problems with distance and spatial
issues, resulting in them either being too close or too far away. If they're
too close it tends to result in the person wanting to get away from them right
away, and if they're too far away eye contact is difficulty, which results in
them getting ignored. All of this isn't limited children. But since I'm
paraphrasing I don't want to get off topic doing more research at the moment,
and I definitely don't want to assume things.</p><p> </p><p>Hydrocephalus Association Teacher's Guide: https://www.hydroassoc.org/docs/A_Teachers_Guide_to_Hydrocephalus.pdf</p><p><br /></p><p>The first post in my series of posts: http://timothy-landry.blogspot.com/2020/05/paraphrasing-hydrocephalus-associations.html<br /></p>
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Name="List Continue 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Continue 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Continue 4"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Continue 5"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Message Header"/>
<w:LsdException Locked="false" Priority="11" QFormat="true" Name="Subtitle"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Salutation"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Date"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text First Indent"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text First Indent 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Note Heading"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text Indent 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text Indent 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Block Text"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Hyperlink"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="FollowedHyperlink"/>
<w:LsdException Locked="false" Priority="22" QFormat="true" Name="Strong"/>
<w:LsdException Locked="false" Priority="20" QFormat="true" Name="Emphasis"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Document Map"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Plain Text"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="E-mail Signature"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Top of Form"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Bottom of Form"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Normal (Web)"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Acronym"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Address"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Cite"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Code"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Definition"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Keyboard"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Preformatted"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Sample"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Typewriter"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Variable"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Normal Table"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="annotation subject"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="No List"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Outline List 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Outline List 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Outline List 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Simple 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Simple 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Simple 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Classic 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Classic 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Classic 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Classic 4"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Colorful 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Colorful 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Colorful 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Columns 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Columns 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Columns 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Columns 4"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Columns 5"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Grid 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Grid 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Grid 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Grid 4"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Grid 5"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Grid 6"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Grid 7"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Grid 8"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table List 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table List 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table List 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table List 4"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table List 5"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table List 6"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table List 7"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table List 8"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table 3D effects 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table 3D effects 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table 3D effects 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Contemporary"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Elegant"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Professional"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Subtle 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Subtle 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Web 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Web 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Web 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Balloon Text"/>
<w:LsdException Locked="false" Priority="39" Name="Table Grid"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Theme"/>
<w:LsdException Locked="false" SemiHidden="true" Name="Placeholder Text"/>
<w:LsdException Locked="false" Priority="1" QFormat="true" Name="No Spacing"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading"/>
<w:LsdException Locked="false" Priority="61" Name="Light List"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading Accent 1"/>
<w:LsdException Locked="false" Priority="61" Name="Light List Accent 1"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid Accent 1"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1 Accent 1"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2 Accent 1"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1 Accent 1"/>
<w:LsdException Locked="false" SemiHidden="true" Name="Revision"/>
<w:LsdException Locked="false" Priority="34" QFormat="true"
Name="List Paragraph"/>
<w:LsdException Locked="false" Priority="29" QFormat="true" Name="Quote"/>
<w:LsdException Locked="false" Priority="30" QFormat="true"
Name="Intense Quote"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2 Accent 1"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1 Accent 1"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2 Accent 1"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3 Accent 1"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List Accent 1"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading Accent 1"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List Accent 1"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid Accent 1"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading Accent 2"/>
<w:LsdException Locked="false" Priority="61" Name="Light List Accent 2"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid Accent 2"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1 Accent 2"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2 Accent 2"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1 Accent 2"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2 Accent 2"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1 Accent 2"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2 Accent 2"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3 Accent 2"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List Accent 2"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading Accent 2"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List Accent 2"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid Accent 2"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading Accent 3"/>
<w:LsdException Locked="false" Priority="61" Name="Light List Accent 3"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid Accent 3"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1 Accent 3"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2 Accent 3"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1 Accent 3"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2 Accent 3"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1 Accent 3"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2 Accent 3"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3 Accent 3"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List Accent 3"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading Accent 3"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List Accent 3"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid Accent 3"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading Accent 4"/>
<w:LsdException Locked="false" Priority="61" Name="Light List Accent 4"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid Accent 4"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1 Accent 4"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2 Accent 4"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1 Accent 4"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2 Accent 4"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1 Accent 4"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2 Accent 4"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3 Accent 4"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List Accent 4"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading Accent 4"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List Accent 4"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid Accent 4"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading Accent 5"/>
<w:LsdException Locked="false" Priority="61" Name="Light List Accent 5"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid Accent 5"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1 Accent 5"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2 Accent 5"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1 Accent 5"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2 Accent 5"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1 Accent 5"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2 Accent 5"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3 Accent 5"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List Accent 5"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading Accent 5"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List Accent 5"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid Accent 5"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading Accent 6"/>
<w:LsdException Locked="false" Priority="61" Name="Light List Accent 6"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid Accent 6"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1 Accent 6"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2 Accent 6"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1 Accent 6"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2 Accent 6"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1 Accent 6"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2 Accent 6"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3 Accent 6"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List Accent 6"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading Accent 6"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List Accent 6"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid Accent 6"/>
<w:LsdException Locked="false" Priority="19" QFormat="true"
Name="Subtle Emphasis"/>
<w:LsdException Locked="false" Priority="21" QFormat="true"
Name="Intense Emphasis"/>
<w:LsdException Locked="false" Priority="31" QFormat="true"
Name="Subtle Reference"/>
<w:LsdException Locked="false" Priority="32" QFormat="true"
Name="Intense Reference"/>
<w:LsdException Locked="false" Priority="33" QFormat="true" Name="Book Title"/>
<w:LsdException Locked="false" Priority="37" SemiHidden="true"
UnhideWhenUsed="true" Name="Bibliography"/>
<w:LsdException Locked="false" Priority="39" SemiHidden="true"
UnhideWhenUsed="true" QFormat="true" Name="TOC Heading"/>
<w:LsdException Locked="false" Priority="41" Name="Plain Table 1"/>
<w:LsdException Locked="false" Priority="42" Name="Plain Table 2"/>
<w:LsdException Locked="false" Priority="43" Name="Plain Table 3"/>
<w:LsdException Locked="false" Priority="44" Name="Plain Table 4"/>
<w:LsdException Locked="false" Priority="45" Name="Plain Table 5"/>
<w:LsdException Locked="false" Priority="40" Name="Grid Table Light"/>
<w:LsdException Locked="false" Priority="46" Name="Grid Table 1 Light"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3"/>
<w:LsdException Locked="false" Priority="49" Name="Grid Table 4"/>
<w:LsdException Locked="false" Priority="50" Name="Grid Table 5 Dark"/>
<w:LsdException Locked="false" Priority="51" Name="Grid Table 6 Colorful"/>
<w:LsdException Locked="false" Priority="52" Name="Grid Table 7 Colorful"/>
<w:LsdException Locked="false" Priority="46"
Name="Grid Table 1 Light Accent 1"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2 Accent 1"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3 Accent 1"/>
<w:LsdException Locked="false" Priority="49" Name="Grid Table 4 Accent 1"/>
<w:LsdException Locked="false" Priority="50" Name="Grid Table 5 Dark Accent 1"/>
<w:LsdException Locked="false" Priority="51"
Name="Grid Table 6 Colorful Accent 1"/>
<w:LsdException Locked="false" Priority="52"
Name="Grid Table 7 Colorful Accent 1"/>
<w:LsdException Locked="false" Priority="46"
Name="Grid Table 1 Light Accent 2"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2 Accent 2"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3 Accent 2"/>
<w:LsdException Locked="false" Priority="49" Name="Grid Table 4 Accent 2"/>
<w:LsdException Locked="false" Priority="50" Name="Grid Table 5 Dark Accent 2"/>
<w:LsdException Locked="false" Priority="51"
Name="Grid Table 6 Colorful Accent 2"/>
<w:LsdException Locked="false" Priority="52"
Name="Grid Table 7 Colorful Accent 2"/>
<w:LsdException Locked="false" Priority="46"
Name="Grid Table 1 Light Accent 3"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2 Accent 3"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3 Accent 3"/>
<w:LsdException Locked="false" Priority="49" Name="Grid Table 4 Accent 3"/>
<w:LsdException Locked="false" Priority="50" Name="Grid Table 5 Dark Accent 3"/>
<w:LsdException Locked="false" Priority="51"
Name="Grid Table 6 Colorful Accent 3"/>
<w:LsdException Locked="false" Priority="52"
Name="Grid Table 7 Colorful Accent 3"/>
<w:LsdException Locked="false" Priority="46"
Name="Grid Table 1 Light Accent 4"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2 Accent 4"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3 Accent 4"/>
<w:LsdException Locked="false" Priority="49" Name="Grid Table 4 Accent 4"/>
<w:LsdException Locked="false" Priority="50" Name="Grid Table 5 Dark Accent 4"/>
<w:LsdException Locked="false" Priority="51"
Name="Grid Table 6 Colorful Accent 4"/>
<w:LsdException Locked="false" Priority="52"
Name="Grid Table 7 Colorful Accent 4"/>
<w:LsdException Locked="false" Priority="46"
Name="Grid Table 1 Light Accent 5"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2 Accent 5"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3 Accent 5"/>
<w:LsdException Locked="false" Priority="49" Name="Grid Table 4 Accent 5"/>
<w:LsdException Locked="false" Priority="50" Name="Grid Table 5 Dark Accent 5"/>
<w:LsdException Locked="false" Priority="51"
Name="Grid Table 6 Colorful Accent 5"/>
<w:LsdException Locked="false" Priority="52"
Name="Grid Table 7 Colorful Accent 5"/>
<w:LsdException Locked="false" Priority="46"
Name="Grid Table 1 Light Accent 6"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2 Accent 6"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3 Accent 6"/>
<w:LsdException Locked="false" Priority="49" Name="Grid Table 4 Accent 6"/>
<w:LsdException Locked="false" Priority="50" Name="Grid Table 5 Dark Accent 6"/>
<w:LsdException Locked="false" Priority="51"
Name="Grid Table 6 Colorful Accent 6"/>
<w:LsdException Locked="false" Priority="52"
Name="Grid Table 7 Colorful Accent 6"/>
<w:LsdException Locked="false" Priority="46" Name="List Table 1 Light"/>
<w:LsdException Locked="false" Priority="47" Name="List Table 2"/>
<w:LsdException Locked="false" Priority="48" Name="List Table 3"/>
<w:LsdException Locked="false" Priority="49" Name="List Table 4"/>
<w:LsdException Locked="false" Priority="50" Name="List Table 5 Dark"/>
<w:LsdException Locked="false" Priority="51" Name="List Table 6 Colorful"/>
<w:LsdException Locked="false" Priority="52" Name="List Table 7 Colorful"/>
<w:LsdException Locked="false" Priority="46"
Name="List Table 1 Light Accent 1"/>
<w:LsdException Locked="false" Priority="47" Name="List Table 2 Accent 1"/>
<w:LsdException Locked="false" Priority="48" Name="List Table 3 Accent 1"/>
<w:LsdException Locked="false" Priority="49" Name="List Table 4 Accent 1"/>
<w:LsdException Locked="false" Priority="50" Name="List Table 5 Dark Accent 1"/>
<w:LsdException Locked="false" Priority="51"
Name="List Table 6 Colorful Accent 1"/>
<w:LsdException Locked="false" Priority="52"
Name="List Table 7 Colorful Accent 1"/>
<w:LsdException Locked="false" Priority="46"
Name="List Table 1 Light Accent 2"/>
<w:LsdException Locked="false" Priority="47" Name="List Table 2 Accent 2"/>
<w:LsdException Locked="false" Priority="48" Name="List Table 3 Accent 2"/>
<w:LsdException Locked="false" Priority="49" Name="List Table 4 Accent 2"/>
<w:LsdException Locked="false" Priority="50" Name="List Table 5 Dark Accent 2"/>
<w:LsdException Locked="false" Priority="51"
Name="List Table 6 Colorful Accent 2"/>
<w:LsdException Locked="false" Priority="52"
Name="List Table 7 Colorful Accent 2"/>
<w:LsdException Locked="false" Priority="46"
Name="List Table 1 Light Accent 3"/>
<w:LsdException Locked="false" Priority="47" Name="List Table 2 Accent 3"/>
<w:LsdException Locked="false" Priority="48" Name="List Table 3 Accent 3"/>
<w:LsdException Locked="false" Priority="49" Name="List Table 4 Accent 3"/>
<w:LsdException Locked="false" Priority="50" Name="List Table 5 Dark Accent 3"/>
<w:LsdException Locked="false" Priority="51"
Name="List Table 6 Colorful Accent 3"/>
<w:LsdException Locked="false" Priority="52"
Name="List Table 7 Colorful Accent 3"/>
<w:LsdException Locked="false" Priority="46"
Name="List Table 1 Light Accent 4"/>
<w:LsdException Locked="false" Priority="47" Name="List Table 2 Accent 4"/>
<w:LsdException Locked="false" Priority="48" Name="List Table 3 Accent 4"/>
<w:LsdException Locked="false" Priority="49" Name="List Table 4 Accent 4"/>
<w:LsdException Locked="false" Priority="50" Name="List Table 5 Dark Accent 4"/>
<w:LsdException Locked="false" Priority="51"
Name="List Table 6 Colorful Accent 4"/>
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<![endif]-->Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4113176436693403378.post-29107513373271644902020-05-20T14:56:00.001-07:002020-05-22T14:23:44.004-07:00Paraphrasing the Hydrocephalus Association's Teacher's Guide: Social and emotional issues (Part 1)<br />
<br />
For anyone that I've met in the last 5 years that's reading this, or
otherwise is coming across my blog for the first time I started writing this
blog several years ago about growing up with a neurological disorder, hydrocephalus.
I eventually started writing about a wider range of topics. After a few years
of writing consistently I needed to take a short break from it. I attempted to
start back up soon after but I was burned out on it still, and ended up taking
a much longer break than I expected. The reason behind had to do with personal
problems that caused me to at least think that I had to drop a lot of things to
deal with it. What gave me the inspiration to start back up, ended up being
more changes in my personal life. The main thing is befriended and having the
opportunity to help a younger person with that has the same neurological
disorder that I do.<br />
<br />
<br />
I'm going to be paraphrasing the Hydrocephalus Association's teachers guide
section by section, while writing about similar topics and posts that I didn't
finish before taking a break. I'm going to go through it backwards because the
topics that seem to be least known is at the end of the guide. I'm going to
start with the Social and emotional issues section, and the main topics are
isolation, social cues. Skills, and depression. I’m going to focus on isolation
and depression, and I'll be writing another post soon that will focus on social
cues and skills. My goal is to keep these posts short, and easier to read.<br />
<br />
<br />
It's common with children with disabilities in general to feel socially
isolated. It's even more common with children with learning disabilities,
because problems with social cues can be involved, which can cause them to
feel left out or feel different. The problems with social cues and skills can
cause them to have fewer friends, and cause them to having a harder time
interacting with their peers. It might not be obvious either because most of
their friendships may be superficial. They may also try to make up for it by
only socializing with adults.<br />
<br />
The certain result of isolation is anger. This is mentioned two different
times in the guide. The first time saying that feeling left out or different
can lead to emotional problems. The second time it's a lot clearer. For some
children with hydrocephalus the anger can result in violent outbursts that may
seem irrational or frightening. Partially because of this it's common for
children with hydrocephalus to be misdiagnosed with ADD or emotional
disturbance. It's also common with children with hydrocephalus, and likely
other disabilities to develop depression or anxiety disorders. Part of the
reason for developing depression may be having little hope that their situation
would improve.<br />
<br />
<br />
Personally my reaction to a combination of isolation and consistent bullying
in Elementary School was not making much of an effort of coming out of my shell
which probably made the isolation part worse. Having a speech impediment, and
the slow process to learn how to speak well enough to be understood by most
people didn't help other. I had a sudden and obvious situation in the 5th grade
that caused me to realize how people saw me, even if it was obvious to me as
soon as I started school because I had barely started learning how to talk, and
a few other things that I had trouble with at the time that was obvious to
other kids, and obvious to me that it wasn't something that was normal for
school aged children. My reaction to both the situation in the 5th grade, and
the years of isolation of bullying before that was rebellion. I was definitely
very angry too, but I didn't really express that anger in obvious ways until I
was a teenager. For me the rebellion was pretty low key, but seemed more
intense at least because of growing up in the church, and not seeing a huge
difference between excessive swearing, and what other kids without, or
sometimes with the same background would have done if they went out of their
way to rebel.<br />
<br />
I had some realizations in early high school that made things even worse for
me, and looking back I assume that hormones didn't help much either. I became angrier
while still not making it obvious. My reaction was becoming really self-conscious,
I already was some, but it got worse. I had become a lot more social in Junior
High. But reacting to my realizations made me far less social, hormones
probably didn't help with this either. It resulted in more anger that was far
more obvious, and more spontaneous and frequent. I ended up reaching out to
someone that managed to calm me down a lot in general before I finished high
school.<br />
<br />
<br />
<br />
Source: https://www.hydroassoc.org/docs/A_Teachers_Guide_to_Hydrocephalus.pdf<br />
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<![endif]-->Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-4113176436693403378.post-7473694304864772152017-06-16T19:42:00.000-07:002017-06-16T20:09:32.731-07:00(Guest blog by Jackie Waters) Tips for Avoiding Prescription Drug Abuse When Dealing with Chronic Pain<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
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<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">Tips for Avoiding Prescription Drug Abuse When Dealing with
Chronic Pain</span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">Chronic pain sufferers face a tough battle nearly every day of
their lives. It’s often difficult for </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">doctors to pinpoint the root causes of non-acute pain and many of
the treatments are hit or </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">miss. Turning to prescription opioid medication to give yourself
comfort may seem like the next </span></div>
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<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">logical step. It’s important to know, however, that prescription
pain medication is often ineffective</span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">and dangerous when it comes to chronic pain. It can lead to abuse,
addiction, and can further </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black;"><span style="color: white;"><span style="color: white;"><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">complicate existing health issues. Here are some tips for <a href="http://www.mayoclinic.org/diseases-conditions/prescription-drug-abuse/basics/prevention/con-20032471" target="_blank">avoiding</a></span><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;"> prescription drug <a href="http://www.drugrehab.org/the-45-warning-signs-of-prescription-drug-abuse/" target="_blank">abuse</a></span><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;"> if you</span></span></span></span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">suffer from chronic pain.</span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: large; margin: 0px;"><b>Stick to the rules</b></span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><b></b><span style="font-size: large;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">When it comes to prescription drugs, it cannot be overstated how
important it is to do things by </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black;"><span style="color: white;"><span style="color: white;"><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">the book. <a href="https://www.drugabuse.gov/publications/research-reports/misuse-prescription-drugs/how-can-prescription-drug-misuse-be-prevented" target="_blank">This means</a></span><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;"> to always follow the prescription, consult a
doctor frequently, and never </span></span></span></span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">ever alter the manner in which you take or the amount you take of
the medication. Drug abuse </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">is not limited to the taking of illegal substances. It’s also not
just about doing too much of a drug </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">(though that is a major problem). Crushing up a pill and snorting
it, taking it more frequently than</span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">the recommended time frame, taking it in combination with other
drugs or alcohol, or any other </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">modification that doesn’t adhere to the doctor's and pharmacist’s
instructions can be drug </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">abuse.</span></div>
<span style="background-color: black;"></span><span style="color: black;"></span><span style="color: white;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;"><a href="http://www.mayoclinic.org/diseases-conditions/prescription-drug-abuse/basics/prevention/con-20032471" target="_blank"><span style="font-family: "times new roman" , serif; font-size: 12pt; margin: 0px; text-decoration: none;"></span></a></span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;"><a href="https://www.drugabuse.gov/publications/research-reports/misuse-prescription-drugs/how-can-prescription-drug-misuse-be-prevented" target="_blank"><span style="margin: 0px; text-decoration: none;"></span></a></span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;"><a href="http://www.drugrehab.org/the-45-warning-signs-of-prescription-drug-abuse/" target="_blank"><span style="margin: 0px; text-decoration: none;"></span></a></span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black;"></span><span style="color: white;"></span><br /></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; text-indent: -0.25in; vertical-align: baseline;">
<span style="background-color: black;"><span style="color: white;"><span style="font-family: "symbol"; font-size: 10pt; margin: 0px;"><span style="margin: 0px;">·<span style="font-size-adjust: none; font-stretch: normal; font: 7pt "Times New Roman"; margin: 0px;">
</span></span></span><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;"> </span></span></span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: large; margin: 0px;"><b>Do not ask for increased dosage for increased pain</b></span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><b></b><span style="font-size: large;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black;"><span style="color: white;"><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">It may seem logical to ask for more <a href="https://www.foundationsrecoverynetwork.com/three-tips-for-avoiding-addiction-to-prescription-drugs/" target="_blank">pain medication</a> </span><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;"> to battle more intense pain, but in fact this </span></span></span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">is dangerous and counterproductive. You want to work on lessening
your dosage of opioids, not </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">increasing it. The more opioids you take in an attempt to manage
your pain the more your body </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">will become tolerant and the more ineffective they will be.
Doctors are responsible for sensible </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">dosing, but it’s also on you. Don’t fall into the temptation. </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;"><b>Turn to alternative, holistic treatments as opposed to
prescription medication</b></span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><b></b><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">Ultimately you’re going to be healthier and avoid the spectre of
addiction if you completely wean</span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">yourself off prescription meds (or don’t begin taking them in the
first place). Chronic pain is a </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">tough condition, and the temptation to take an “easy way out” -
even it’s only temporary - is hard</span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">to resist at times. But through lifestyle changes and a more
comprehensive, total body </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">approach, you can minimize your chronic pain to manageable levels.
</span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">Massage therapy is one way to deal with localized, intense pain.</span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">“The effectiveness of massage therapy for pain has been supported
by various studies. It has </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">been found most effective for non-specific lower back pain, both
acute and chronic, but studies </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">have also found massage to be effective for shoulder pain,
headache pain, fibromyalgia, mixed </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black;"><span style="color: white;"><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">chronic pain, and neck pain,” <a href="https://saferlockrx.com/7-alternatives-to-opioids-for-pain-management/" target="_blank">notes</a></span><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;"> SaferLock. </span></span></span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">Other alternative treatments include aromatherapy, acupuncture,
and hypnosis. </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">Of course, there is no quick fix for chronic pain and you must
also make sweeping lifestyle </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">changes if you want to truly manage it. First, you should stop
smoking and limit your intake of </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">caffeine and alcohol, both of which can cause inflammation. Next
you must commit to eating a </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">diet rich with vegetables, fish, nuts, and fruit as opposed to one
filled with red meat, fried food, </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">and sugar. After that, it’s vital that you commit to getting at
least 30-45 minutes of moderate </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">physical activity per day. </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">Opioid medication can be effective in treating acute pain, but
when it’s used to treat chronic pain</span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">the risk of abuse and eventual addiction skyrocket. If you find
yourself needing to get help with </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black;"><span style="color: white;"><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">opioid addiction, <a href="https://familydoctor.org/condition/opioid-addiction/" target="_blank">start here</a></span><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">. It’s best to not go
down the prescription meds path if you can avoid </span></span></span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
<div style="background-attachment: scroll; background-clip: border-box; background-image: none; background-origin: padding-box; background-position: 0% 0%; background-repeat: repeat; background-size: auto; line-height: normal; margin: 0px; vertical-align: baseline;">
<span style="background-color: black; color: white; font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">it. </span></div>
<span style="background-color: black;"></span><span style="color: white;"></span><br />
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<span style="background-color: black;"><span style="color: white;"><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;">Photo Credit: </span><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;"><a href="https://pixabay.com/en/health-cure-vitamins-tablets-621354/">Pixabay.com</a></span></span></span><span style="font-family: "segoe ui" , sans-serif; font-size: 10pt; margin: 0px;"></span></div>
<b></b><i></i><u></u><sub></sub><sup></sup><strike></strike>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-4113176436693403378.post-68191171878311074412016-08-19T04:36:00.002-07:002016-08-19T04:38:22.140-07:00Chronic pain (Part one): What I want others to know. <div style="margin-bottom: .0001pt; margin: 0in;">
<span style="font-size: 13.5pt;">I've refrained from posting anything that from posting about my
current health issues on my blog because I don't know if anyone I know if any
of my acquaintances that aren't trusted enough for me to be friends with them
on Facebook, or upper management from my work ever looks at my blog or will
find it. I'm assuming that if anyone in corporate has found it that it would
have been brought up to me or one of my managers at some point. I've had
ongoing issues that partially mostly has to do with my hydrocephalus, but
having do with other health problems as well that has caused me to have a
constant splitting headache since the end of 2010, and daily headaches for
about a year and a half before that. By constant I don't mean daily or off and
on, I mean it never goes away. Before anyone asks I've been seeing doctors
including my neurosurgeon for the majority of the time that it's been going on.
They've found at least one of the sources of it that does have to do with my
Hydrocephalus, but we're having issues fixing it. I do also plan on getting
back on track with some of those doctors soon, and if things still don't work
out I intend on getting other opinions. So my topic today is about what I
want people that I know about my chronic pain. I also hope that it helps others
that have the same kind of issues, rather it's encouraging to them or it's
something that they can share with others so that they can understand their
pain as well. <o:p></o:p></span></div>
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<br /></div>
<div style="margin: 0in 0in 0.0001pt;">
<span style="font-size: 13.5pt;">I've never been
prescribed stronger pain meds, just low dose anti-depressants and low dose anti-seizure
meds by multiple doctors to try to "fix" the problems that way. None
of them have worked and the Botox treatment they tried worked enough that I
couldn't really tell any difference going through the process. But I could
definitely feel it when it stopped working several months later. I would be
willing to constantly be going with the Botox treatment but I wasn't but the
part that the insurance doesn't cover adds up really quickly, and I can't
afford to keep going. So instead I take over the counter meds, usually just at
work and especially on days where a lot of heavy lifting is done because I work
in the produce department at a grocery store. It might not seem like a job that
requires heavy lifting, but most produce boxes/containers are at least 30
pounds, and the a lot are between 45 and 60. I've gotten some slack for calling
that heavy lifting from people whose jobs require to lift a lot more, but it's
a lot for someone with health issues like mine and for someone that has never
has a job where I have to lift 100+ pounds. It took a while to even remotely
get used to lifting that much, and it helped me burn fat and gain a significant
amount of muscle over time. I also assume that it works the same for lifting
even heavier amounts. Back to the subject, it gets pretty obvious that I take
pain killers more often than people are usually advised to , and what I keep on
hand at work looks like a lot, especially considering there's some things that
I don't take regularly. I've gotten slack from some coworkers about it, some
that I've been open to them about my chronic pain, and others almost not at all
because I'm afraid that they'll use that information against me, which has
happened in the past. It's not something that is recommended to take on a
regular basis, but my health problems are not normal and I've gotten the okay
for all the doctors I've been seeing recently to keep on taking it that way.
There is also a difference between what is commonly recommended dosage on pain
killers to take on the bottle, and how much doctors will say it's okay to take
if you're a chronic pain sufferer (depending on the doctor of course). I almost
always take closer to the higher 2nd recommended dosage, and I'll admit that
sometimes I take more than I should. The people who freak out that I take pain
killers, or some others that don't usually freak out when they see me taking
more than it says on the bottle to take. Also pain killers doesn't completely
take away my pain, it just puts a dent in it, it just makes it more tolerable
and makes me function better. <o:p></o:p></span></div>
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<div style="margin: 0in 0in 0.0001pt;">
<span style="font-size: 13.5pt;">The first year or
two dealing with frequent and then chronic pain was the worse, after barely
getting headaches at all for 20 years despite living with a neurological
disorder my whole life. But after that in a way I got used to, of course I'll
never completely get used to it, especially since considering how the last
several years has gone, that it will keep on getting worse until there's
something done about it. During this time I couldn't really hide my pain, and
the majority of my complaining about it, either in person, or on Facebook was
during this time. I started to lose friends at this point, not just because I
started to have to cancel plans and slowly stop attending things outside of
work, but because of all the complaining I did on social media about it. People
who especially didn't understand, just saw me frequently complaining on
Facebook overlooking the reason behind it. So there's some that assume that
deleted me because of it, and some that were straight forward that they were
sick of seeing my negative posts "every time they opened Facebook"
and deleted or blocked me over it. After that time period it became in a way
that I can't really explain, a different kind of pain. It's gotten worse since
then, but still a different kind of pain that I don't need to complain about it
as often. It also got old to me as well, complaining about something that's not
going away, especially during that period of time when I wasn't really doing
anything about after trying the first 2 or 3 times. I complain once in a while
on Facebook, but refrain on it because I don't feel the need to complain as
much as I did for years, but I get tired of the way the posts get responded to.
I also don't to have it seem that I'm doing it to get attention, I do it as a
way to vent. Also the greeting of "How are you?" changes with you
have chronic pain, and from what I've noticed from interacting with customers
at work that it happens when your life just really sucks too. It doesn't feel
like a greeting to me, and definitely to others with chronic pain considering
what I've learned from other chronic pain sufferers. It feels more like a
question, instead of a greeting. There's some that actual want to know how
someone is doing when asking that question, but even with the majority of those
people "I feel like shit" or a equivalent (less obscene) response to
that isn't a reasonable response. So especially someone that you don't know,
which is more common when you work in customer service "good" is the
only reasonable response, which is also typically the 2nd part of the greeting.
I and others with chronic pain feel like we're lying to someone when we answer
the question we feel like we're lying to them. If I'm talking to customer then
I respond with a positive answer, which still might not always be good. But if
I'm talking to someone that I know, again it's usually at work when I'm asked
that question I tend to skip answering then ask them how they are instead. I
realize it's rude, but the majority of people that ask me are the same ones
that would get just as butt hurt if I answered with something along the lines
as "I feel like shit". I definitely really don't want to answer with
"good" when I can, but I haven't decided which other way of answering
would be the rudest. <o:p></o:p></span></div>
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<br /></div>
<div style="margin: 0in 0in 0.0001pt;">
<span style="font-size: 13.5pt;">I have ways of
dealing with it, rather those ways may be natural or not. One way is I've
become a hermit, and I usually only break out of my shell when I have to force
myself to at work. This could be taken two ways, the first being that I don't
attend as many activities outside of work as much as I use to, or as much as I
wish to. I've had multiple friends cut me off because of this too, not
understanding how much it takes out of me. If not intentionally, because I'm
just not at those social functions in the first place. The second way and the
main point I'm trying to make is that I tend to not pay as much to my
surroundings. I live in a pretty sketchy neighborhood, so if I'm walking to or
back from somewhere I force myself to pay attention more. I do that at work
mostly on the sales floor when on the clock, because customers wouldn't know
what I'm dealing with so it's just assumed that I'm being rude and inattentive.
Unless I'm really stressed or just have to be really huffing it, which makes it
harder to not be a hermit. I'm probably more of a hermit in social situations,
not even just at social functions but when I'm out doing things like running
errands. Being a hermit, even when I force myself to be more social, causes
me to miss overhearing things that people expect me to, or how I use to do it
before my health problems started kicked into gear. Being a hermit is probably
equally as much if not more of just a part of my body dealing with chronic
pain. The second way I deal with it not so much, at least not on purpose at
first. It's mind over matter, which in the beginning I had ways of doing it
that would make the pain almost unnoticeable. But when the pain got worse,
those ways of dealing with it stopped working almost completely. But those ways
that I prefer not to mention what they were, isn't technically mind over
matter. Mind over matter is focusing your mind on something else, so that you
feel the pain less. Some claim that it doesn't work or doesn't work for them,
but they tend to not be trying hard enough, or don't understand how it works.
The way that works the best for me, is keeping my mind busy at work, doesn't
work as well when I don't have as much to focus on outside of work. Chronic
pain also builds over pain tolerance over time, as in my head would hurt a lot
more and I wouldn't be able to function at all if it would as hit me as hard as
it is now. Much less painful headaches use to cause me not to be able to
function in the beginning, which also goes along with my point of it being a
different kind of pain earlier on. It also makes any other pain that I have
that's not associated with the headache a lot less noticeable, which can be a
real problem. For example, if I don't see myself cut myself or see a cut
reopen, it usually results in me bleeding and not realizing it until I see the
blood. <o:p></o:p></span></div>
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<br /></div>
<div style="margin: 0in 0in 0.0001pt;">
<span style="font-size: 13.5pt;">I have more that I
was going to post about on chronic pain, but it's an important and will
probably get a lot of views, so I don't want to bury what needs to be said in
this post. I plan to post about this subject at least a third time, so if
there's anything that anyone to know about chronic pain or if you would like to
do a guest blog and speak about your own experience with it, or anything
neurological related in addition to it please contact me. Either on the
comments or contact me via E-mail, via Facebook or on the several social media
sites that I'll be posting this to. Thanks for reading :) <o:p></o:p></span></div>
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<div class="MsoNormal">
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Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-4113176436693403378.post-26900065075044809822016-08-17T05:38:00.000-07:002016-08-17T05:38:26.063-07:00Ending my almost year long blogging hiatus ;)<br />
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I'm currently using up leftover vacation time at my work so I don't lose it before my anniversary date, and since the plans that I had didn't work out, I figured it would be a good time to at least try to restart my blog. I haven't written anything in almost a year for multiple reasons. My laptop fried shortly before I went on hiatus, and instead of getting it fixed it or buying a new one I decided to just go without one for a while. Instead I decided to get a tablet and use my family's PC if I really need to. I can be on my feet all day at work, and function fine but I have a hard time sitting in front of the computer for a couple hours to write.<br />
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I also stopped writing because I was burned out with it. Except for one other shorter hiatus I had been writing once or twice a month, and trying to do so at the same time every month. When I first started blogging I was encouraged to keep a pattern of that times that I posted, instead of posting sporadically. Reading other blogs, I've noticed that most people post sporadically. The people who do post in more of a pattern or even on a regular basis are professional bloggers, and I'm definitely not. When I stopped writing, I was also burned out on the topic. <br />
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I picked hydrocephalus to write in the first place because I knew that I wouldn't be running out of topics easily, and it's something that I have to live with it. The disadvantage is that it caused me to overthink things on a regular basis. So in order to try to avoid letting this blog to have a negative effect on me, and trying to push myself to think of topics and write in a certain time frame I've decided to just post whenever I'm ready, which could be a few days or several months apart. More than often I'll be writing to get things off my chest that I don't think would be interrupted right if I posted it as a Facebook status instead. But I also plan on writing on topics as it comes to me. I also have multiple posts that I was working on when I stopped blogging. So they've been in my drafts for a year or longer. I'm going to go back through and rewrite some of those, and then just scrap others. I'm also going to spend more time writing each post so it will be more than scattered thoughts. <br />
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This post is pretty scattered, but I did at least have a good idea of what I was going to write before I started. I did also end up writing a lot more on a topic that I've covered almost every time I've taken any kind of hiatus, so I'm going to cut it short because my next post is probably going to be a long one. The reason that I try to not really long posts/articles is because I have trouble reading really long articles etc. in one setting, especially if I intend to remember the majority of what I'm reading. That most likely has to do with my nonverbal learning disability, and probably from Hydrocephalus itself too. I assume that the majority of the people that read my blog found it via search engines or social media because they have similar medical problems. So I don't want to cause the same problems that I personally try to avoid. Thanks for reading :)Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-4113176436693403378.post-59324295374809363112015-09-18T08:31:00.000-07:002015-09-18T08:33:10.140-07:00Hydrocephalus awareness month, Phoenix Hydrocephalus Walk and Great Pumpkin Race (in Tucson)I haven't posted in a month and a half, and I'm probably be going to write a little less frequently again. I have some backlogging done and a list of topics I'll like to research and write about in the near future. I'm not gonna be posting the backlogs yet because I want to go back and rewrite because I'm confident that I can make them better. When it comes to writing and rewriting posts I've started putting it off again because I don't want to rush through posts, and have them lack in quality. I also want to keep my mind on other things instead of Hydrocephalus, which includes losing the desire to write about. I'm going to try to start another blog about other things that interest me so writing about Hydrocephalus wouldn't be a buzzkill.<br />
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I've still been keeping up with my blog stats, so I still know which posts are frequently the most popular and which keywords people are finding my blog by. So I'm going to talk a little bit about each of the 3 main topics that people have been searching for and only finding older posts.<br />
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The first is Hydrocephalus awareness month which is the month of September. I usually post a lot this month on my personal Facebook but I've only posted anything Hydrocephalus related at all this year because of the same reason that I haven't been writing. There's several Hydrocephalus foundations that are doing some pretty cool things this month mostly via their social media pages. I'll leave links for a few of them below so you can check out what they're doing or if you need help from them.<br />
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There's many Hydrocephalus Association walks each year but I only post about the one in Phoenix because it's the one closest to me, and usually the one that I attend every year. In previous years it's be held at the Phoenix Zoo and last year it was held at Steele Indian School Park. This year it's going to be at Freestone Park in Gilbert on October 24th. If you're like me and you have to take public transportation to get there, there's about a one mile walk (it might be a little shorter) between the closest bus stop and the park. From what I can tell by Google Maps there's a sidewalk that goes all the way from the bus stop to the park.<br />
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The closest hotels are along Superstition Freeway and about 4 or 5 miles away. From what I'm able to find there's not really any hotels on the nearby bus routes but there are some over near the Superstition springs center in Mesa. There's a transit center at the mall that has a bus take will drop you off close to the park. There's also buses that stop at that transit center that will take you to and from the Mesa Greyhound station, one that will connect you to the Light rail and a express bus that will take you to Downtown Phoenix. There's a handful of hotels to pick from in that area with plenty of restaurants, grocery stores and a mall. There's plenty of hotels to pick from on the Superstition highway with restaurants spread out and there's a couple clusters in the same area that has several restaurants in one shopping center.<br />
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The Great Pumpkin Race has been held in Tucson every year since 2006, and this year it's going to be October 11th at Buckelew Farm, I found out about it after I connected with the organizer Thomas Tronsdal on Facebook after seeing a post he had made on a Phoenix Hydrocephalus Walk page. I had been speaking to other people with Hydrocephalus in other States and even other Countries but he was the first from the same city. In previous The Great Pumpkin Race has benefited the UMC Neurological department and the Hydrocephalus Association but this year it will benefit The Arizona Center for Autism.<br />
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The Great Pumpkin Race is held at Buckelew Farm which is West of Tucson on Ajo Highway. so public transportation isn't a option. Breakfast is usually included at the race and there's other food and drink that can be bought at the Farm. There's a fun kids race before the 5k, and a free pumpkin comes is included in registration.<br />
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There's a few restaurants close by on Ajo Highway between the farm and getting back into town. If you're coming from out of town and need to somewhere the night before there's no hotels that I can find in the area but there are many that you can choose from in Tucson.<br />
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Below are links to both events and their Facebook pages.<br />
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<a href="http://hawalk.kintera.org/faf/home/default.asp?ievent=1130006" target="_blank">Phoenix Hydrocephalus Walk</a><br />
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<a href="https://www.facebook.com/events/913768932004372/" target="_blank">Great Pumpkin Race Facebook event page</a><br />
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<a href="https://www.facebook.com/Phoenix.Arizona.Hydrocephalus.Association.WALK?fref=ts" target="_blank">Phoenix Hydrocephalus Walk Facebook page</a><br />
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<a href="http://www.azroadrunners.org/races/detail/pumpkin" target="_blank">Great Pumpkin Race</a><br />
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Below are links for some notable Hydrocephalus foundations that have things going on this month,<br />
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<a href="http://www.hydroassoc.org/" target="_blank">Hydrocephalus Association Website</a><br />
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<a href="https://www.facebook.com/HydroAssoc?fref=ts" target="_blank">HA Facebook</a><br />
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<a href="https://twitter.com/HydroAssoc?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor" target="_blank">HA Twitter</a><br />
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<a href="https://instagram.com/hydroassoc/" target="_blank">HA Instagram</a><br />
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<a href="https://plus.google.com/+HydroassocOrg/posts" target="_blank">HA Google+</a><br />
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<a href="https://www.youtube.com/user/HydroAssoc" target="_blank">HA Youtube</a><br />
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<a href="http://www.hydrocephaluskids.org/wordpress/" target="_blank">Pediatric Hydrocephalus Foundation Website</a><br />
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<a href="https://www.facebook.com/Pediatric-Hydrocephalus-Foundation-Inc-176479809049547/timeline/" target="_blank">PHF Facebook</a><br />
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<a href="http://nhfonline.org/" target="_blank">National Hydrocephalus Foundation</a><br />
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<a href="https://www.facebook.com/National-Hydrocephalus-Foundation-157011164322510/timeline/" target="_blank">NHF Facebook page</a><br />
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<a href="http://www.hydroangelsoveramerica.org/" target="_blank">Hydro Angels Over America</a><br />
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<a href="https://www.facebook.com/HydroAngelsOverAmerica?fref=ts" target="_blank">HAOA Facebook Page</a><br />
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<a href="https://twitter.com/thehydroangel" target="_blank">HAOA Twitter</a><br />
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<br />Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-4113176436693403378.post-68597804473243340242015-08-07T13:09:00.000-07:002015-08-07T13:09:48.119-07:00Media views on Hydrocephalus: Melon heads legendInstead of a detailed description of this topic, I'm going to post a variety of links. In some versions of the legend of the "melon heads" are actually children with Hydrocephalus, but in others they are not. The legend dates back to before there was modern shunt technology so at that point it often went untreated. In a way I can see how some of the character traits of the melon heads may have been seen in people with untreated Hydrocephalus, which of course was exaggerated. I'm sure that it was insulting then but now that the description of the melon heads doesn't even come close to most who live with Hydrocephalus. I saw a pretty accurate of Hydrocephalus although vague on several sites there's no mention of current treatment and ways of life, so it could give people a bad description of people living with the condition. Even if they look more into it, or know someone with it, it might make them believe that's what we're like at least in a way, no matter what.<br />
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<a href="http://www.abovetopsecret.com/forum/thread442442/pg1">http://www.abovetopsecret.com/forum/thread442442/pg1</a><br />
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<a href="http://www.weirdus.com/states/ohio/fabled_people_and_places/melonheads/">http://www.weirdus.com/states/ohio/fabled_people_and_places/melonheads/</a><br />
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<a href="http://www.grandhaventribune.com/article/strange-grand-haven/307691">http://www.grandhaventribune.com/article/strange-grand-haven/307691</a><br />
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<a href="http://stygianunderground.com/tag/melon-heads/">http://stygianunderground.com/tag/melon-heads/</a><br />
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<a href="http://hydrocephalusandme.blogspot.com/2009/02/friday-thirteenth-special-mutant-feral.html">http://hydrocephalusandme.blogspot.com/2009/02/friday-thirteenth-special-mutant-feral.html</a><br />
<br />Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-4113176436693403378.post-83680082899667095422015-07-17T19:39:00.001-07:002015-07-17T20:38:25.229-07:00Writing therapyAt the point I have about 5 months of backlog, but there's some things that I need to get off my chest and personally the best way for me to do this is through writing. I've already started to tackle some of these issues privately through close and trusted friends and will continue doing that with matters that need to or I prefer to be private. At the same time I'll be using this blog for things that I don't mind being public. I don't expect to get much feedback when I'm using my blog as "writing therapy" if at all but it still helps a lot more than keeping it to myself, and I've figured out solutions just by writing my thoughts.<br />
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I'm going to start with a problem that was a bigger problem growing up in the church, and problem affected my grades in school than it has been in any part of my life (but thinking about it, it has probably had some kind of negative affect on every part of my life). My topic for this post is giving up easily and ended up not finishing a task, especially when it's something that needs to be done in writing. It's discouraging to think about it but it's something I've been working on reversing for a few years. It's also definitely Hydrocephalus related but it's a state of mind that can be caused by other underlying problems. It's a personal topic, but it's something that I know it's something people can relate to, with or without Hydrocephalus, or even a learning disability. I also mean it as a warning, so whatever it is they would cause someone to not do as well, rather it's grades in school or something else that at least partially they can at least start to overcome the problem earlier than later. I don't mean to say that it's a problem that everyone who see's this has, but based on prior research I've done for my blog and communicating with others with Hydrocephalus during the last several years I can say it's pretty likely.</div>
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Thinking back to school it was probably the biggest problem in the classroom, when it came to note taking. I couldn't focus on writing what I heard very well unless the teacher was very persistent about it, which I hated back then but I'm very grateful for it now. I could have gotten a late start to it but I wouldn't because I felt like a failure from the start. I had the same problem when it came to keeping up with planners and similar things, especially when we had to fill them at a certain time altogether in class but the idea was dropped a few days or a few weeks into the school year. That didn't matter though because I remember actually thinking from the very start that it wasn't going to work out so I didn't even try it out. I should have tried to think of a solution or approach someone for help, but at that point (6th grade), I had already grown to hate school. The transition from Elementary to Middle School ended up being a bombshell, and I made a personal decision to not really try at all, which didn't change until the last year or two of High School. I'm not sure how I ended up only being one semester late to graduating or how I finished at all. The result of not taking notes or trying to keep up with a planner was constantly forgetting homework assignments especially after I decided to not really care in the first place. The result of both not taking notes and not doing homework assignments were failing tests. The obvious end result was failing half my classes and having to take some classes up to 3 times. If I knew then what I knew now, I definitely would have pushed myself harder to write notes even when it wasn't seen as necessary (as in when reading a text book) because just by writing something down helps me a lot when it comes to processing that information. Like at work I need to write a list to remember what needs to be put out next (I'm a Produce Clerk for a division of Kroger). If I don't do it my memory fails me and I usually don't remember anything. If I do write down a list however I usually can remember everything that needs to be put out without having to go back and check the list. If I had done this in school I might have passed a few tests.</div>
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I grew up in the Evangelical church, and except for a 2 year period when I first really start to get fed up with the way my life was going, and how that related to God and Church. I've dug deeper on this subject before and I intend to again in the near future. Something that really frustrating me for a long time which really frustrated me as a kid, and in a different way as a young adult until I left the church a 2nd time was the note taking issue. When I was a kid it was filling out a little form in Sunday School, where there was a part typed up already and then a place that needed to be filled out. I recall started it usually but then I would lose my focus, and give up as soon as I missed something. There was a 2nd assignment that we had to do during the week that I always managed to not do, so that didn't help to encourage me to push myself a little bit harder. When I got old enough to be expected to pay attention to a sermon, which was made worse when I decided to switch churches and taking notes was sort of expected. I couldn't process information from the sermon well, and I still had the same mind set that I had when it came to taking notes when I was in High School. Also when I got older everything switched to a bible study format which caused a lot of different other problems which I'll touch on at another time. </div>
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There might be (and probably is) a bigger solution but what I know now that I wished I would have known earlier is being encouraged to (which usually means encouraging myself) to just pick up where I left track because it would help a lot more to miss a few points than to miss the whole thing. It's a really simple concept but if it wasn't obvious to me, I can assume that it might not be obvious to other people as well. I hope that the most recent time that it was mentioned to me wasn't the first, but it was better timing than any other time since I'm in the process against a lot things where the underlying cause is Hydrocephalus. It also fits in well with one of the major things I've slowly been working on, persistence. It's a uphill battle and I'll probably never get my persistence to the point where it could be if my skull wasn't a fish bowl and if I didn't have medical tubing pushed through my brain. If you're not aware of what any kind of brain damage or neurological disorders can and will do to your brain, I'll probably get crap for doubting myself and talking about persistence at the same time but unfortunately it's the truth. </div>
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For anyone that's in school, or has a kid with Hydrocephalus or a similar condition that results in a learning disability I want to close with a tip. I'm not professional at all unless you need someone to pick out a good avocado or watermelon for you, but I'm writing this from my own experiences and what I've learned through personal research and paying a little more attention the last few years. My advice is to write down as much as possible (or at least when possible). I assume taking notes in class can be rough, but it might really help when it comes to studying at home. With notes it's might help to reminded that it's okay to miss some points as long as you try to focus again after you realizing that you're missing those points.</div>
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When it comes to church just being aware that it's okay to miss points during childhood Sunday School would have helped a lot. Taking notes will stick suck rather, and I'm glad that it's something that I don't have to worry about. The church I've been attending on and off for four years consistently has forms that is somewhat like the ones I described having in Sunday School class as a kid. I make it a point to always to fill them out, and just by doing that helps a lot. This is also something I wish I would have known a lot. I know that people who read my blog has many different views on religion but if you do ever attend some kind of religious service I definitely recommend trying to take some kind of notes, even if there's no form provided.If you have a kid with Hydrocephalus or a similar condition or are a Sunday School teacher or have a similar position to a kid with some kind of intellectual disability, no matter how small of one it wouldn't hurt to use a reminder if you see someone struggling. Again, I realize that not everyone can relate to the church part but I write a lot about personal experience, and it was a really big part of my life when I was a kid, and it's starting to become a big idea again but from a different perspective. </div>
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Thanks for reading, I really hope you the reader got something encouraging out of this.</div>
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