Showing posts with label Phoenix Hydrocephalus Walk. Show all posts
Showing posts with label Phoenix Hydrocephalus Walk. Show all posts
Wednesday, September 13, 2023
Phoenix Hydrocephalus Walk 2023
I've had a noticeable amount of views on my prior hydrocephulas walk posts recently. They had T-shirt pick ups for 2 years due to Covid. They had it at SkySong last year, where they'll have it again this year on October 28th. Unfortunately it's looking like this is the first year since I started going in 2012 that I won't be able to attend.
The venue has a large parking lot where they have registration, booths, games etc. set up. The path they use for the walk itself is great.
If you're coming from out of town there is a hotel right next to the venue, and a Motel 6 close by near the zoo. Last year I stayed at a affordable Air BnB that was a mile away. Public transit is available very close to the venue.
The Great Pumpkin Race in Tucson raised money for both UMC/Banner Health Neurology department and the Hydrocephalus Association at certain points after I started attending around the same time I started going to the HA walks. The last one was in 2019. It was started for one of the Co-Host's Son. He is now a Uni Student it is highly unlikely they woukd start up again.
There is a link to Phoenix HA Walk page below. Thanks for reading!
https://secure2.convio.net/hydro/site/TR/WALK/General?fr_id=2051&pg=entry
Friday, September 18, 2015
Hydrocephalus awareness month, Phoenix Hydrocephalus Walk and Great Pumpkin Race (in Tucson)
I haven't posted in a month and a half, and I'm probably be going to write a little less frequently again. I have some backlogging done and a list of topics I'll like to research and write about in the near future. I'm not gonna be posting the backlogs yet because I want to go back and rewrite because I'm confident that I can make them better. When it comes to writing and rewriting posts I've started putting it off again because I don't want to rush through posts, and have them lack in quality. I also want to keep my mind on other things instead of Hydrocephalus, which includes losing the desire to write about. I'm going to try to start another blog about other things that interest me so writing about Hydrocephalus wouldn't be a buzzkill.
I've still been keeping up with my blog stats, so I still know which posts are frequently the most popular and which keywords people are finding my blog by. So I'm going to talk a little bit about each of the 3 main topics that people have been searching for and only finding older posts.
The first is Hydrocephalus awareness month which is the month of September. I usually post a lot this month on my personal Facebook but I've only posted anything Hydrocephalus related at all this year because of the same reason that I haven't been writing. There's several Hydrocephalus foundations that are doing some pretty cool things this month mostly via their social media pages. I'll leave links for a few of them below so you can check out what they're doing or if you need help from them.
There's many Hydrocephalus Association walks each year but I only post about the one in Phoenix because it's the one closest to me, and usually the one that I attend every year. In previous years it's be held at the Phoenix Zoo and last year it was held at Steele Indian School Park. This year it's going to be at Freestone Park in Gilbert on October 24th. If you're like me and you have to take public transportation to get there, there's about a one mile walk (it might be a little shorter) between the closest bus stop and the park. From what I can tell by Google Maps there's a sidewalk that goes all the way from the bus stop to the park.
The closest hotels are along Superstition Freeway and about 4 or 5 miles away. From what I'm able to find there's not really any hotels on the nearby bus routes but there are some over near the Superstition springs center in Mesa. There's a transit center at the mall that has a bus take will drop you off close to the park. There's also buses that stop at that transit center that will take you to and from the Mesa Greyhound station, one that will connect you to the Light rail and a express bus that will take you to Downtown Phoenix. There's a handful of hotels to pick from in that area with plenty of restaurants, grocery stores and a mall. There's plenty of hotels to pick from on the Superstition highway with restaurants spread out and there's a couple clusters in the same area that has several restaurants in one shopping center.
The Great Pumpkin Race has been held in Tucson every year since 2006, and this year it's going to be October 11th at Buckelew Farm, I found out about it after I connected with the organizer Thomas Tronsdal on Facebook after seeing a post he had made on a Phoenix Hydrocephalus Walk page. I had been speaking to other people with Hydrocephalus in other States and even other Countries but he was the first from the same city. In previous The Great Pumpkin Race has benefited the UMC Neurological department and the Hydrocephalus Association but this year it will benefit The Arizona Center for Autism.
The Great Pumpkin Race is held at Buckelew Farm which is West of Tucson on Ajo Highway. so public transportation isn't a option. Breakfast is usually included at the race and there's other food and drink that can be bought at the Farm. There's a fun kids race before the 5k, and a free pumpkin comes is included in registration.
There's a few restaurants close by on Ajo Highway between the farm and getting back into town. If you're coming from out of town and need to somewhere the night before there's no hotels that I can find in the area but there are many that you can choose from in Tucson.
Below are links to both events and their Facebook pages.
Phoenix Hydrocephalus Walk
Great Pumpkin Race Facebook event page
Phoenix Hydrocephalus Walk Facebook page
Great Pumpkin Race
Below are links for some notable Hydrocephalus foundations that have things going on this month,
Hydrocephalus Association Website
HA Facebook
HA Twitter
HA Instagram
HA Google+
HA Youtube
Pediatric Hydrocephalus Foundation Website
PHF Facebook
National Hydrocephalus Foundation
NHF Facebook page
Hydro Angels Over America
HAOA Facebook Page
HAOA Twitter
I've still been keeping up with my blog stats, so I still know which posts are frequently the most popular and which keywords people are finding my blog by. So I'm going to talk a little bit about each of the 3 main topics that people have been searching for and only finding older posts.
The first is Hydrocephalus awareness month which is the month of September. I usually post a lot this month on my personal Facebook but I've only posted anything Hydrocephalus related at all this year because of the same reason that I haven't been writing. There's several Hydrocephalus foundations that are doing some pretty cool things this month mostly via their social media pages. I'll leave links for a few of them below so you can check out what they're doing or if you need help from them.
There's many Hydrocephalus Association walks each year but I only post about the one in Phoenix because it's the one closest to me, and usually the one that I attend every year. In previous years it's be held at the Phoenix Zoo and last year it was held at Steele Indian School Park. This year it's going to be at Freestone Park in Gilbert on October 24th. If you're like me and you have to take public transportation to get there, there's about a one mile walk (it might be a little shorter) between the closest bus stop and the park. From what I can tell by Google Maps there's a sidewalk that goes all the way from the bus stop to the park.
The closest hotels are along Superstition Freeway and about 4 or 5 miles away. From what I'm able to find there's not really any hotels on the nearby bus routes but there are some over near the Superstition springs center in Mesa. There's a transit center at the mall that has a bus take will drop you off close to the park. There's also buses that stop at that transit center that will take you to and from the Mesa Greyhound station, one that will connect you to the Light rail and a express bus that will take you to Downtown Phoenix. There's a handful of hotels to pick from in that area with plenty of restaurants, grocery stores and a mall. There's plenty of hotels to pick from on the Superstition highway with restaurants spread out and there's a couple clusters in the same area that has several restaurants in one shopping center.
The Great Pumpkin Race has been held in Tucson every year since 2006, and this year it's going to be October 11th at Buckelew Farm, I found out about it after I connected with the organizer Thomas Tronsdal on Facebook after seeing a post he had made on a Phoenix Hydrocephalus Walk page. I had been speaking to other people with Hydrocephalus in other States and even other Countries but he was the first from the same city. In previous The Great Pumpkin Race has benefited the UMC Neurological department and the Hydrocephalus Association but this year it will benefit The Arizona Center for Autism.
The Great Pumpkin Race is held at Buckelew Farm which is West of Tucson on Ajo Highway. so public transportation isn't a option. Breakfast is usually included at the race and there's other food and drink that can be bought at the Farm. There's a fun kids race before the 5k, and a free pumpkin comes is included in registration.
There's a few restaurants close by on Ajo Highway between the farm and getting back into town. If you're coming from out of town and need to somewhere the night before there's no hotels that I can find in the area but there are many that you can choose from in Tucson.
Below are links to both events and their Facebook pages.
Phoenix Hydrocephalus Walk
Great Pumpkin Race Facebook event page
Phoenix Hydrocephalus Walk Facebook page
Great Pumpkin Race
Below are links for some notable Hydrocephalus foundations that have things going on this month,
Hydrocephalus Association Website
HA Facebook
HA Twitter
HA Instagram
HA Google+
HA Youtube
Pediatric Hydrocephalus Foundation Website
PHF Facebook
National Hydrocephalus Foundation
NHF Facebook page
Hydro Angels Over America
HAOA Facebook Page
HAOA Twitter
Friday, March 13, 2015
Traveling alone with Hydrocephalus (and getting back into writing my blog)
This is the first post that of several that I'm backlogging so when I do eventually post this it will be at least a month or two after I actually wrote it. I got burned out but kept on posting for a while after usually not actually posting something the day or even week that I had planned to. When I went on the adventure this post is about I ended up abandoning this blog altogether and have only written one substantial post since July. I enjoyed not having to think about it on a regular basis to keep on top of it and I plan on writing it now in a way that I don't have to anymore.
In August I spent two days traveling via Greyhound bus from Arizona to Iowa and then back two weeks later to be with one of my best friends for his wedding day. I wasn't told I couldn't fly and I haven't been given the impression from my neurosurgeon that it would be in the past. I am however having shunt problems and the idea of that and elevated pressure made me feel uncomfortable. Also not counting meals taking the Greyhound is usually half the price of flying. Some people with shunts have problems with flying but others have flown many many times without having a problem. If you want to know if you can fly or not your neurosurgeon would be your best source the majority of the time.
The other problem was that it was my first time traveling out of state (I've gone up to Phoenix a few times alone prior). I really didn't want to bring it up to random people I sat by on the bus or especially in stations so I got a medical id bracelet instead. If something went very wrong my bracelet would have been noticeable and I had all my contact info in my wallet. Of course it would be more risky for people with other conditions like epilepsy for example or if their shunt malfunctions more on a regular basis. I made it up there safe and really got to unwind for a couple weeks.
My anxiety level because of the smallness of the town and not knowing other people except for the two people I was visiting and a few others I met while up there, I'm sure it would have had the opposite affect with some people. I felt noticeably better when I was up there except for allergies because of the lack of pollen in Arizona, and I slept better. I made it up there and back safe and I took advantage of the medical id by going alone to the Hydrocephalus walk in Phoenix in October.
In August I spent two days traveling via Greyhound bus from Arizona to Iowa and then back two weeks later to be with one of my best friends for his wedding day. I wasn't told I couldn't fly and I haven't been given the impression from my neurosurgeon that it would be in the past. I am however having shunt problems and the idea of that and elevated pressure made me feel uncomfortable. Also not counting meals taking the Greyhound is usually half the price of flying. Some people with shunts have problems with flying but others have flown many many times without having a problem. If you want to know if you can fly or not your neurosurgeon would be your best source the majority of the time.
The other problem was that it was my first time traveling out of state (I've gone up to Phoenix a few times alone prior). I really didn't want to bring it up to random people I sat by on the bus or especially in stations so I got a medical id bracelet instead. If something went very wrong my bracelet would have been noticeable and I had all my contact info in my wallet. Of course it would be more risky for people with other conditions like epilepsy for example or if their shunt malfunctions more on a regular basis. I made it up there safe and really got to unwind for a couple weeks.
My anxiety level because of the smallness of the town and not knowing other people except for the two people I was visiting and a few others I met while up there, I'm sure it would have had the opposite affect with some people. I felt noticeably better when I was up there except for allergies because of the lack of pollen in Arizona, and I slept better. I made it up there and back safe and I took advantage of the medical id by going alone to the Hydrocephalus walk in Phoenix in October.
Tuesday, September 9, 2014
Phoenix Hydrocephalus walk 2014/ Great Pumpkin Race 2014
I haven't written any posts in about 6 weeks because I went out of state for a couple weeks for the wedding of one of my closest friends. I missed the first post for August because it was a few days before I left and I was busy getting ready and I missed the second because I was in Iowa and it would have been really difficult to write a blog post with my phone. I've been keeping track of my statistics and I've noticed that there has been a couple people looking for information on the Hydrocephalus walk in Phoenix next month (I live a couple hours away in Tucson). I'm also going to include another Hydrocephalus (neurology in general) related event the weekend following the Hydrocephalus walk in Tucson.
There has been at least a Hydrocephalus walks in Phoenix before but it's been a couple years since the last one and all the previous ones were at the Phoenix Zoo. This year it's going to be at the Steele Indian School Park at Central and Indian School Park (300 east Indian School Road). I've never lived in the area and except for family reunions I've only been there a handful of times so I decided to check out the area online and figure out where I'll be staying and how to get there. The Steele Indian School Park is at the location where the Indian School in Phoenix was for many decades and if you don't drive or want another option other than driving the Metro Valley Light Rail has a stop right at Indian School and Central. The walk is October 4th and registration starts at 8:30am with the walk starting at 10am.
The Great Pumpkin race is going to be in the Tucson area on October 12th. It's a 5k at Buckelew Farms that raises money for the Hydrocephalus Association too. The person that puts the race together each year is Thomas Tronsdal who has a son with Hydrocephalus. The race starts at 8am with a kids race at 7:30am. Buckelew Farms is outside of Tucson at 17000 West Ajo Highway.
The links below provides information for registration for both events. Also for information about the Valley Metro Light Rail. There's no public transportation that will get you to the Buckelew Farms area and there is no hotels/motels really close that I know of but there are many on the connecting interstates that's close by (I-10 and I-19). I used different colors for the link so there would be less confusion about which links are for which events. The Phoenix Hydrocephalus walk is in red, Great Pumpkin race is in blue and the Valley Metro light rail information is in purple. Thanks for reading.
http://hawalk.kintera.org/faf/home/default.asp?ievent=1098504
https://www.facebook.com/Phoenix.Arizona.Hydrocephalus.Association.WALK
https://twitter.com/phoenixhawalk
http://www.azroadrunners.org/races/detail/pumpkin
https://www.facebook.com/events/820005214699988/
http://www.valleymetro.org/metrolightrail
http://raillife.com/2009/07/phoenix-light-rail-map/
There has been at least a Hydrocephalus walks in Phoenix before but it's been a couple years since the last one and all the previous ones were at the Phoenix Zoo. This year it's going to be at the Steele Indian School Park at Central and Indian School Park (300 east Indian School Road). I've never lived in the area and except for family reunions I've only been there a handful of times so I decided to check out the area online and figure out where I'll be staying and how to get there. The Steele Indian School Park is at the location where the Indian School in Phoenix was for many decades and if you don't drive or want another option other than driving the Metro Valley Light Rail has a stop right at Indian School and Central. The walk is October 4th and registration starts at 8:30am with the walk starting at 10am.
The Great Pumpkin race is going to be in the Tucson area on October 12th. It's a 5k at Buckelew Farms that raises money for the Hydrocephalus Association too. The person that puts the race together each year is Thomas Tronsdal who has a son with Hydrocephalus. The race starts at 8am with a kids race at 7:30am. Buckelew Farms is outside of Tucson at 17000 West Ajo Highway.
The links below provides information for registration for both events. Also for information about the Valley Metro Light Rail. There's no public transportation that will get you to the Buckelew Farms area and there is no hotels/motels really close that I know of but there are many on the connecting interstates that's close by (I-10 and I-19). I used different colors for the link so there would be less confusion about which links are for which events. The Phoenix Hydrocephalus walk is in red, Great Pumpkin race is in blue and the Valley Metro light rail information is in purple. Thanks for reading.
http://hawalk.kintera.org/faf/home/default.asp?ievent=1098504
https://www.facebook.com/Phoenix.Arizona.Hydrocephalus.Association.WALK
https://twitter.com/phoenixhawalk
http://www.azroadrunners.org/races/detail/pumpkin
https://www.facebook.com/events/820005214699988/
http://www.valleymetro.org/metrolightrail
http://raillife.com/2009/07/phoenix-light-rail-map/
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