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Saturday, October 7, 2023

Elementary School P.E/Adaptive P.E rewrite

I scrapped two posts a while ago when I was getting rid of posts that were really inaccurate. With two of them I turned them into drafts because of inaccurations and putting someone into a good light that hated me (a teacher). They were a lot more in depth than this post will be. I'm going to read into those posts later, and possibly make another post about this subject. I was talking to a few people on Facebook when I was in high school. But someone found me several years later in hydrocephalus groups on Facebook that started to send others my way right away. I found out through some of these people, and in the hydrocephalus groups about people who had to sit out completly because of their shunts. From what I remember most of these people were/are older than me by a decade. If you're just recently looking into my blog current shunt technology really started to improve in 1962 with a shunt that Roald Dahl helped invent to help his Son who has hydrocephalus. Before his shunt the technology exisisted but it was far more dangerous, which says a lot considering how bad things can still get now. So the survival rate really started to improve at this point. Which is why I've never really met anyone with congenital hydrocephalus (either online or in person) that is currently much older than 60. There was rules regarding football and contact sports that had to be taken seriously in my case, and they were. My 5th grade teacher noticed how bad I was doing athletically. I ended up in Adaptive P.E for 2 years which was either 1 on 1, or 1 on 2. It helped a lot, although I've made no attempt at sports since High School. I had at least 2 adults in my life that was making a huge attempt at making me feel like that I was mentally retarded. The adaptive P.E instead went out of the way to do the opposite. There was other stuff going on at the that made me black out things that the 2 other adults were doing to make me feel the wrong way about myself. But even though it was the same period, I either never forgot the words that the instructer used to make me feel better, or it was far easier for me to remember how he thought of me. Look through my labels at the end of the web version of this post for my post about Roald Dahl. I'll be working on a more indepth post about him soon. I haven't been able to work on more indepth posts for a while for multiple reasons. Thanks for reading!

Wednesday, September 13, 2023

Phoenix Hydrocephalus Walk 2023

I've had a noticeable amount of views on my prior hydrocephulas walk posts recently. They had T-shirt pick ups for 2 years due to Covid. They had it at SkySong last year, where they'll have it again this year on October 28th. Unfortunately it's looking like this is the first year since I started going in 2012 that I won't be able to attend. The venue has a large parking lot where they have registration, booths, games etc. set up. The path they use for the walk itself is great. If you're coming from out of town there is a hotel right next to the venue, and a Motel 6 close by near the zoo. Last year I stayed at a affordable Air BnB that was a mile away. Public transit is available very close to the venue. The Great Pumpkin Race in Tucson raised money for both UMC/Banner Health Neurology department and the Hydrocephalus Association at certain points after I started attending around the same time I started going to the HA walks. The last one was in 2019. It was started for one of the Co-Host's Son. He is now a Uni Student it is highly unlikely they woukd start up again. There is a link to Phoenix HA Walk page below. Thanks for reading! https://secure2.convio.net/hydro/site/TR/WALK/General?fr_id=2051&pg=entry

Sunday, March 5, 2023

Participating in a Special Ed Track Meet against my will (in 5th grade).

Before I start I have no medical problems other than hydrocephalus. The last 14 years has worn me out, mostly having to deal with the problems with my shunt. When I was in Elementary especially later on I had trouble running because of my ankles, dealt with my speech impediment, and motor skills. Special Ed classes didn't start until Middle School, and it made me normal enough because of the other kids in the class. We would have a feeder school track meet for Elementary Schools going into the High Schools in the district. They went through the process of finding the fastest kids in each participating class in each grade. I didn't expect to not come in last. I didn't question it when I was called into the office to be given a shirt the day of the track meet, and was sent along with everyone else. I wasn't told at all what was going on until I was called to run with kids from other Elementary Schools that actually had severe physical/developmental disorders. We all got a blue ribbon after, my main it just as far a the closest trash can. I had no choice than go through with it, and get out of the view of the other students as fast as I could. This changed the way I see myself immediately. People are way more likely to jump to assumpations about me as an adult than when I was a kid. I'll post again if I find a way to deal with it, other than complaining whenever someone makes themseleves obvious. Purposely getting away from certain people has been the best option so far, but not always possible. One thing I didn't mention at first. My Parents weren't notified at all, and my Dad was pissed. My Teacher that year went out of his way to have my back, and the Principal did too. They would have found out last minute without being able to get me out of the situation.