Hydrocephalus and sensitivity to noise

Edit: I've learned more about this subject recently, and I also started writing my blog again a few months ago, so I'll write more about it in March, and link it to this post. It turns out it's a sensory thing, and a disorder called sensory processing disorder is very common for people with hydrocephalus.

The link to the new post

.  According to the Spina Bifida Association there's no studies related to this specific topic, and I couldn't find much information outside of that site and a similar site. This is something that I sort of realized that was Hydrocephalus in at least Middle School, a few years before I started looking more into my condition (Hydrocephalus). It's not something that everyone with Hydrocephalus experience but it's common, and I've met many others online who have Hydrocephalus who deal with it. The sources I found refer to it as something people with shunts deal with, so it seems like it's something that has to do with the shunt specifically. Both sites that I found have to do with Spina Bifida instead of Hydrocephalus though. The two most common noises according to the sources I found are high pitched and loud noises. There is a range of reactions to noises that people can have, and for those that have seizures it can be a seizure trigger. There is no known treatment for those that have it as a side effect to Hydrocephalus but in general audiologists and ENT physicians can use a desensitization technique. Personally I've had sensitivity to high pitched noises since at least around the 4th or 5th grade and probably longer but I can't remember any specific situations having to do with it before that point. Except for being skittish I wasn't really sensitive to loud noises until I was an adult and now I'm sensitive to most noises. Especially with high pitched noises my reaction has always been anxiety, but in a way where it's not really noticed. Thanks for reading, I'm planning on writing about similar subjects or asking others to do it in the near future.

http://www.spinabifidaassociation.org/site/c.evKRI7OXIoJ8H/b.8095331/k.983B/Hydrocephalus.htm

http://www.sbhi.ie/wp-content/uploads/2014/02/The-Effects-of-Hydrocephalus.pdf

Media views on Hydrocephalus: Miracle in Lane 2

This blog along with several others that I've done is about well-known people with Hydrocephalus or shows or movies that have focused on it. I've written about most of the well-known people that have Hydrocephalus that I know of. Now I want to focus on shows and movies which involve more research, which is why I haven't written about this topic in a while.

I'm focusing on a made for TV movie this week that originally aired and used to be played frequently on the Disney channel. The movie originally aired when I was in the 8th grade (2000). At the time I didn't know anyone else with Hydrocephalus. I discovered the Hydrocephalus and talked to a few people from a Hydrocephalus e-mail group but I wouldn't meet anyone in person or really connect with anybody with it online for almost a decade. Also at the time my only surgery was when my shunt was placed at 16 months, and rarely had headaches. Currently I've been having headaches and migraines on a daily basis but for now I'm revision free still. I had and still have other problems that have to do with my Hydrocephalus but not the childhood brain surgeries that most kids with Hydrocephalus experience. I realized that on average normally people with Hydrocephalus would have to have a shunt revision every 2 or 3 years, so I knew that in that way I was different than the main character in the movie and most people with Hydrocephalus. It's also why I avoided talking about Hydrocephalus with others because I felt like I was a poser because of the lack of surgeries I've had. What changed that ended up being the first person I met on Facebook who had part of his experiences with Hydrocephalus on his profile. He's about 25 years older than I am and only has had a few surgeries since childhood and his current shunt is about the same age as mine. I met a lot of others with Hydrocephalus through him within a pretty short period of time, and the first few were within the next couple of days. Another of those few people was someone who has become one of my closest friends out of all the people I've met online, had a revision free childhood and had his first surgery when he was a adult a year or two before I met him.

The movie is a true story about a kid living with Hydrocephalus and Spina bifida named Justin Yoder. The movie is about how was inspired to become a boxcar racer and win. His family fought a rule that you could only use a foot brake and not a hand brake. Even if I didn't had to deal with surgeries or being in a wheelchair there was parts of the movie I could relate in one way or another. It didn't matter much to me because neither of my siblings played sports, but contact sports was the one thing that I was told not to do so I wouldn't get hurt and ending up damaging my shunt, so I would have to sit out a lot of the time. When it came to his family talking about his surgeries, the struggle to play medical bills and also his revision during the movie I could relate to it because I knew that it could happen to me without warning too even if it's something I never experienced. Our finances were usually tight growing up, so that made the thought of the possible emergency surgery more stressful.

There's a link to a site where you can stream the movie online. It does ask you to download a movie player but the movie should play without needing to download anything. Thanks for reading :)



http://putlocker.bz/watch-miracle-in-lane-2-online-free-putlocker.html